I had a large tumour and left kidney removed in December and had immunotherapy in February for secondaries on my lungs. Unfortunately I had a reaction to the immunotherapy resulting in pneumonitis and was given steroids to suppress the immunotherapy. I’ve now been told that it would be too dangerous to have any further immunotherapy and have been offered oral targeted therapy. I’ve been given the choice of Pazopanib and Sunitinib and my Oncologist has recommended Pazopanib. I would be grateful if anyone is able to offer any advice or share experience of these drugs, particularly side effects and survival rates.
Hi Cader and a very warm welcome to the online community
It's always difficult when the medical professionals give us a choice so it's a good idea to seek other people's experiences with these drugs.
I'm not a member of this group, as I had a different type of cancer, but I noticed that your post hadn't had any replies yet. By replying to you it will 'bump' your post back to the top of the discussions list where it'll be more easily seen.
While you're waiting for replies, if you type 'pazopanib' and 'sunitinib' separately into the group search bar you can have a read through some of the previous posts which mention these drugs and respond to any of the more recent ones if you think the poster can help you further.
You may also be interested in this information about pazopanib and sunitinib that Macmillan has produced which includes information on possible side effects.
It would be great if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
All the best with whatever you decide to do
x
Good evening Cader
I have stage 4 kidney cancer, found while on 6 weekly scans for mesothelioma, it’s since spread to brain, lung, adrenal gland, 5th rib and pelvic bone, I’m on cabonaztinib at the moment and it’s working very well
good luck
Hi may I ask how long you have been on cabozantinib as I have my first lot being delivered tomorrow and was wondering how long before side effects start.
I have stage 4 Rcc with mets in leg , shoulder and lungs.
hope yours carries on working
Regards
Morning Rosethorns
started targeted therapy 5 months ago, no side effects during first month, then mild mouth sores, muscle pain in legs, joint pain in knees and feet, lasted for about three weeks, recently loss of appetite , fatigue, diarrhea and weight loss, although not bad over last week or so, treatment seems to be working very well for me, PET scan next week
good luck with your treatment
Hi, thanks for your reply. Glad to hear cabonaztinib is working well. I started Pazopanib yesterday and have just had a bit of nausea so far.
Good luck to you too.
Thanks,hopefully my side effects will not be too bad . It as long as it helps I can put up with that I think. Good luck on your treatment too
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