Practical advice on incontinence products for my husband please

Hi

I don't have the experience you need to answer this question but I noticed that your post hadn't had any responses yet. By replying to you it will bump it back to the top of the page where it'll hopefully be seen by someone who can help you.

I'm also tagging this group's Community Champion buttercup01 into my reply to you as she may be able to help or point you in the right direction to receive help.

x

I know there are  lots of products on the market, from Easylife to Amazon - both washable and disposable incontinence pants, some of which look like adult nappies as far as I can tell.

It may be well worth you either posting in "Ask an expert" or ringing the helpline on 0808 808 0000, 8am to 8pm, 7 days a week to ask if you will get incontinence items for free or not. 

Do come back and let us know please.

Thanks for your reply. We decided the answer was trial and error!  We have ordered an assortment of different pads and adult nappies to see which ones work best for us. My husband is coming home this afternoon so we will find out for ourselves ... very soon!

Thanks again.

Hi

This might sound strange, but if you can't find anyone with experience within this community I'm a member of a dementia group on Facebook and double incontinence is a big issue that many carers face and they have excellent advice and suggestions It's an incredibly supportive group and I know that they would be more than happy to help you if they can. This is the link https://www.facebook.com/groups/701216963312629/.

Thank you Jo. That is very helpful.

I just had a quick read of you blog 

There is now dust in my eyes 

is David still on Paz or did they changed his treatment at all? This latest turn of events  is tough. Lots of strength being sent your way xx

The blog is horribly out of date and I can't see me having the time to update it now. Good idea at the time but when things were going well, there was nothing to say. When there was a problem, there wasn't time to update it.

David came off Pazo last May when it stopped being effective. That was a shock because he was really well on it & side-effects were only really an inconvenience.  He was then started on immunotherapy and was having Nivolumab infusions once a month. That stopped at the end of December because it wasn't working. 

He has multiple  secondary tumours up and down his spine that have caused 'pathological fractures'.  They were talking about another drug once the pain from the T7 vertebra was under control. Then the one at the base of his spine started all these problems. From walking about normally to losing the use of his legs etc was less than two weeks. That was only five weeks ago, so it's been a huge shock to everyone's system. We don't know yet if he will have any more treatment. The consultant hasn't ruled it out, but we just don't know. He has one foot in the treatment system and the other in the palliative care system. We have a clinic appt early in April, but how we physically can get him there might be challenging.

Do let us know how April appt goes