Hi I have metastatic clear cell Kinsey cancer that’s now in my pancreas , stomach and lymph nodes. im on lenvatinib and even though it’s been a rocky road of only 3 weeks continuous meds. It seems to have stabilised the tumours. is anyone else just...
Hi everyone! I posted a couple of days ago on a different forum about this. I am on Novilumab, and have been for a year. Last week, after my usual blood tests before treatment, it was discovered that my platelet count has suddenly plummeted. Everyone...
Hi everyone, I'm having a bit of a wobble and thought I would reach out for some support on here. I've been on Pembrolizumab as an adjuvant therapy since March and I am now feeling a bit sorry for myself. I seem to be collecting a new side effect...
Hi. I'm quite new to this forum and have been following everyone's comments regarding operations and treatments. I've been diagnosed with a 9cm tumour on the right kidney and am now awaiting removal of kidney and tumour. I've been told I may or may not...
Hi my husband had a kidney removed in February 22 and went to gp in March this year with persistent back/side ache. They arranged for a ct scan which has shown an enlarged lymph node near where the kidney was removed attached to his main artery, because...
I saw my consultant yesterday who confirmed that I have a low grade cancer in my only kidney. Fortunately it is in a favourable position to be lopped off as he so eloquently put it haha (I actually like this guy!) It appears that a 1½cm 'cyst' that...
Hello friends I’ve been part of this forum for about 3 months now and in that time I’ve noted many of my fellow sufferers have metastatic RCC and have also undergone immunotherapy. What I’ve never considered until now is how many of you have Clear...
Hi Everyone, I’m 53 years old and sadly I have stage 1 suspected RCC presenting as a 5cm mass in the upper pole of my left kidney. Due to the uncertainty around the waiting list times in the C19 era I’m looking at having a laparoscopic Nephrectomy...
I’ve had renal cancer for 2 years and been on immunotherapy for the past 18 months, but sadly it has stopped working for me. The cancer has spread out of my kidney to the surrounding lymph nodes. I have now been given 2 choices going forward and I’m after...
Hi my husband has stage 3-4 kidney cancer it's in both kidneys and his lungs, he's been on immunotherapy since December which was working but when he went down to the one drug instead of 2 the treatment has stopped working and the tumors on his kidneys...
