Good morning everyone, I’m here to find out if anyone has been on Lenvatinib and Everolimus and can tell me if they had any side effects I should look out for. I know we are all different and experience different side effects but I wanted to see if anyone has been on these 2 drugs. I was on Cabozantinib and Nivolumab however my doctor has said my cancer is worse and we need to change to Lenvatinib and Everolimus. This will be my 2nd line of treatment.
I have also read on Kidney Cancer UK that in England the NHS only subscribes 3 lines of treatment, after which they say there’s nothing more we can do. Is this true? Just 3 lines of treatment? Do they just not keep going until they find a treatment that works? I know these drugs are very expensive and the NHS has cost to look after, but just 3 lines!!!!!.
Please if anyone can help with the above please let me know. Thank you. XX
I am on Lenvatinib with pembrolizumab so not exactly the same but still immunotherapy with targeted therapy. My main issue with the Lenvatinib has been high blood pressure which meant it was on and off for a while. This then followed by aches and pains in the back of the head so was off it for a while again. All sorted out now and recent scan shows reductions in tumour size. I think fatigue tends to be pretty much a given. Otherwise just a few incidents of diarrhoea. Hope this helps.
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