my husband is seeking some help/guidance from others who may have gone through difficult decision process
Does anyone know of anyone who has it in a tricky spot within the kidney if so did you have total nephrectomy ?
medial border is unclear which makes positive margin in that area higher it is located almost in the hilum and is endopytic which makes surgical extirpation difficult
My husbands was picked up incidentally as most seem to be - It's Bosniak 4 T1 N0M0
It's been caught early which is awesome news and less than 7cm they believe will be slow growing however some evidence of his condition AS suggests that inflammation can have an affect in tumours and assist in their mestasizing which is a concern
Normally due to size this would be a straight forward partial nephrectomy but due to the location unfortunately this poses many risks as they either won't be able to remove it all or they will try and will Nic main artery during surgery causing life to be at risk ending up in total nephrectomy anyway surgeon said he would be having heart palpitations doing a partial. (Obviously in an ideal world no surgeon would want to see a 40 year old loose a kidney if a partial was possible) but we are where we are in terms of location which can't be changed. They have said asking for full removal from outset is not unreasonable at all
my husband is most scared of them to try a partial due to risks involved he can have a biopsy for them to see if low or high grade but biopsy comes with risks itself (hitting main artery, bleeding post biopsy, seeding, inconclusive results)
He ideally just wants them to say it's high grade and taking the whole kidney so he doesn't have to make the decision
However if comes back low grade or inconclusive he then still doesn't have answer and has had another procedure and puts himself at other risks in process?
For me due to location I would opt for full nephrectomy but he wants others views on who have been through this which is where you lovely lot come in :)
Atleast if full removal It's all gone and he can stop worrying? His only 40!
would appreciate your views of those who have gone thought this difficult decision and how you have coped after
Did you have a biopsy?
Did you have a partial , any complications after?
Did you have a full nephrectomy , any regrets ?
thanks so much
Hi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I can't help with the experience you're after, as I had a different type of cancer, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be more easily spotted.
While you're waiting for replies you could have a look through some of the previous posts using the search bar at the top of the page to help you narrow it down. If you don't get any replies you could also post in the ask a nurse section of the online community and one of the specialist nurses will respond within 3 working days.
It would be great if you could pop something about your husband's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Thanks so much for your reply Jules, my husband has also opted for full and op is 29th April 
The surgeon said any choice was acceptable and up to my husband so long as his happy for total removal then obv the surgeon is happy as a partial would have been very hard and likely end up as total anyway. Where are you having yours? My husband is having at Princes Grace London
Due to age yes ideally partial would be better but due to location it pOsper too many risks in our opinion and from hearing other peoples views / stories some who had partial wish they went full. We have caught it early so let's get rid of it all and pray to god that will be the end of it . Also radical surgery is more straight forward than partial so hopefully recovery better for him and you
Wish you all the luck with your surgery and thanks so much for taking the time too reply xx
