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Hello, I was diagnosed with stage 4 HL in July 2024 after ongoing chest pain with tiredness, an ultrasound to check gallbladder identified enlarged spleen in June (and anemia on May bloods). I put two and two together and asked my GP for a haematology...
Hi all, I went through 8 months of ABVD chemo last year, my final one was in December. I just wondered how folk found their recovery post chemo. I have more energy on the whole, I’m able to walk the dog and I try and get to the gym at least twice a...
Hello everyone, I am so pleased I have found this forum as I have felt a bit on my own and not sure if the side effects I was experiencing were just me. I feel very reassured having read some of your experiences. I started my treatment in April and...
In a nutshell it's a mess. No regular rhythm or routine and regular "gut ache" which feels like a really tight stomach. Have been taking Laxido but doesn't seem to cut it. Been talking 1-2 sachets per day, should I up the dose? Thanks.
Anyone else struggled with chills and shivering at night / when you wake up? Start chemo Monday so can't be chemo related. Did have some steroids a week or so back which I guess are an initial treatment whilst waiting for chemo. Thanks.
Hello everyone , I was diagnosed at the beginning of January. I live in a block of flats which is always filthy & lifts are always breaking . Ive asked mg housing for a medical transfer and was wondering if anyone has done the same & if they have...
Hi everyone, 34 year old female with Hodgkins Lymphoma. I'm on day 10 of escBEACOPDac and feeling dreadful. I've just finished my first round and I'm starting the 'rest' week, if it can be called that. I've been getting a fever almost everyday since...
Hi I’m a 63 year old woman who until a month ago was completely well active and working. I had been having night sweats for a few weeks and then went to the GP with chronic indigestion. I also noted a lump in my neck. GP was amazing very thorough I had...
Got my diagnosis today. Classical HL. Start 6months chemo Monday, being admitted for a couple of days to keep an eye on how I respond. ABVD regime every 2 weeks I believe. Strangely optimistic.
I had a stem cell transplant appointment , we had a discussion on how the procedure is done. Can someone help me with there experience and the side effects they faced. I also have a child 3 years how do you cope when you are hospitalised for those weeks...
