Newly Diagnosed

Hi again Chris ChrisYorks and good that you now know what type of Lymphoma your have..

Hodgkin's Lymphoma is very treatable with good results, let’s look first some of the group members pick up in your post.

You may find this link helpful as you get yourself ready for treatment….

Top tips for the day of your chemotherapy

Hi Chris

You have every reason to be optimistic. I was in the same boat as you back in 2010, it was such a relief to get a diagnosis and treatment plan after all my weird symptoms. 

Good luck with the treatment, it's bloody hard work so be kind to yourself.

Best wishes

Hi Chris,

welcome to this “community “ . I had HL stage 4 back in 2019. Had ABVD as well . I had 6 treatments ( scan after 4) all of it had gone except a tiny bit in my hip so went on to have a few other treatments, but no point in confusing you with this at the moment as you will hopefully not been to have anything more than ABVD .

i got the all clear the following June and although I was weak and a bit shell shocked I was absolutely fine .. I am not back to pre lymphoma diagnosis and feel great!!

ABVD is every two weeks , I felt fine for a few days then tired and achy for a few days , back to normal after that ready to start again. Never felt sick although took anti sickness tablets . Mouth was sore once which hurts but have mouthwash   Should help .

i can go on and on about treatment but everyone copes very differently. I never ever thought I would die of HL and tried to treat it all as “job” that I just had to get on with it . I of course had tons of support from my Husband , family and friends and of course the whole cancer care team at both Bolton and The Christie .

you will be fine but happy to give any advice anytime ,

Take care .. Lisa .

Hi Chris - Same for me last year, had escBEACOP instead of ABVD, so it was every 3 weeks. 

I felt optimistic too, you follow a protocol and are under close medical supervision, plus it is a treatment plan that has been around for many years because it has positive outcomes. So I felt in control and controlled. Before the full diagnosis I didn't feel this way and I was very lost because I didn't know what it could be. I also felt very reassured starting treatment because you have a 24/7 line to specialist nurses, before this you just rely on getting lucky with a GP appointment.

All the best for Monday and for the next few months!