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Hello I’m new here i have been here but on another group before but now im worried about having lymphoma im 22 and im terrified i have this small lymph node im guessing and It hasn’t fully gone down in over a month its painless but the body of it is moveable...
Hi everyone My mum was diagnosed with HL stage 3S. And it’s been a really tough time. Her PET scan after 4 cycles showed neck complete improvement but chest area (where her biggest lump was) had only shrunk by 50%. Our doctor said to continue on the...
Hi, My sister has been diagnosed with stage 2 Hodking Lymphoma. She starts chemo on Monday, yep, just before Christmas. She is in good spirit and feeling super positive. She has a good support network at home, including a partner, three very close friends...
I’m on cycle 1. And I’m so scared right now and I’m finding the hospital stays really hard that I’m crying a lot. All I want it to be at home. I had 10 days in hospital. Now I’m in again after a few days home cause I have a fever, my infection markers...
Hello all just started treatment for this had first tablet today Nurse was lovely but it's very scary hearing you have lymphoma but here's hoping my treatment isn't too invasive still trying to get my head around it to be honest how is everyone else coping...
Hello Group, I am a Nodular Sclerosing Hodgkins Disease survivor who had radiotherapy treatment back in the early 1980's as a 22/23 year old. I am now suffering the side effects of that radiotherapy (mantle) - swallowing problems, drop head syndrome ...
Hi, I’m not sure if I am looking in the right place for answers, or if I should even be in this group as my journey ended 15 ago; but for the last year or so I can’t shake the emotion attached to what I went through. I had stage 2b HL and was 15 weeks...
Hi everyone - 27F diagnosed with stage 2 HL, due to start treatment eBEACOPDac tomorrow I was just wondering if anyone had a temporary CVC line in their neck (not a Hickman line). My PICC fitting failed due to the mass on my chest so they couldn’t get...
its been a while since i posted last but it seems i have been struggling with all the after effects from chemo/radiotherapy i still have high levels of fatigue tired all the time i still have Reflux issues i am still awaiting outpatient Appointment for...
Hi, Wondering if I can get some advice, I have already had 2 cycles of abvd for classic hodgkin's lymphoma and was moved to escalated beacop-dac for 2 cycles after my interim pet scan showed that although most of the cancer was gone the under arm...
