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Finished Chemoradio (30 RadioT +4 cisplatin) on June 2nd this year...spent 12 days in Ninewells Dundee afterwards due to weight loss control....times were challenging...but small steps forward were being made...PEG tube feeding kept my weight stable....
Hi.. I am awaiting biospy results for horse voice and obviously am hoping it's all clear but since my biospy I now have no voice at all, nothing comes out of my mouth..its been 2 weeks since biospy not goi g to ENT clinic for another 2 weeks. Feel...
Hi all just an update I’ve had three ops, now on second day of radiotherapy hoping I wint be too uncomfortable with the side effects. My face is slowly going from swollen to wonky but I think a few months will sort it all, tbh I don’t think I’ll ever...
Hi again my husband is three weeks post treatment and still feeling so very tired...Im wondering how long others were tired for? Thanks x
Well, it’s three years today since I got the phone call confirming they’d found SCC cells in the annoying lump in my neck, ‘Probably tonsillar in origin’. In the three months following the full diagnosis of T1, N1, M0 I underwent TORS to remove the offending...
Help Any one any tips for getting through radiotherapy and chemotherapy, my husband is about to start on Monday and we have really no idea what is about to hit us.
Hi all I had my op for parotid gland and nymph lode removal. The dentist requested my wisdom teeth be removed during surgery but as I was under anaesthetic for 13 hours they ran out of time and didn’t do it. The dentist is now saying I need to get it...
Hi all In 2019 I was diagnosed with Sinonasal SMARCB-1 Deficient Carcinoma. I was treated at the Churchill clinic in Oxford. I had TPF chemotherapy (that didn’t work), followed by an operation (I lost my eye) and 6 weeks of radiotherapy. I’ve had...
Hi all My surgery took place last Tuesday I had my uvula and right tonsil removed along with all of my soft palate there is now a really big hole in my throat and it’s so much bigger than I thought it would be, I have a surgical obturator which is very...
Hi there ,my husband has been admitted to hospital this weekend,he can't swallow ,his mouth is so sore ,he is having the nose tube fitted tomorrow,I am so worried about how he is going to get through the next 15 sessions of radiotherapy and 1 chemo when...
