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New her and just been told without surgery I have a max of 9 month.so afraid of what could lie ahead as I’m told tongue and voice box would be taken away and left speechless permanently will also need a tube in the throat to be able to Brest all to much...
Hi everyone, my partner had his results appointment today and it is HPV+ Oropharyngeal, T4N1M0 on base of tongue with radiotherapy/chemo as treatment. We have another appointment tomorrow after the MDT to go through treatment plan in more detail. We're...
Hi, I have reached a huge milestone after 2 surgeries and 30 rounds of proton beam radiotherapy I am finished and back home (I had to live away for proton beam). Surgeries were to remove olfactory neuroblastoma and radiotherapy for nose, lower brain and...
Just completed my first week of radiotherapy I've already developed sore lips & small ulcers on my tongue. I was prescribed Diflam mouth wash/gargle for sore throat. Any suggestions to ease my mouth & lips? Thank you
My taste has been affected significantly, after only one week of CRT. Most things taste of soap! I am trying to identify what is common between the most challenging foods. For some foods, and in my case, it may be flour. Any thoughts?
Hi hope all is OK with everyone just update operation 9/9/25 total laryngectomy neck dissection. Finding it difficult at minute due to not eating can't smell or taste not sleeping dizzy spells can not have voice TEP due to very serious acid reflux forever...
Hi everyone, it's come to the point where I feel I'm as good as I'm ever going to get, so I've been preparing for my return to work.. It feels like quite a big step after so long, but it needs to be done.. The team at work are going to make my transition...
Hi Everyone, I'm a 71 guy living in the USA. I have recently been diagnosed with HPV-associated squamous cell carcinoma on the base of my tongue. Stage II but no lymphnode involvement or metastasis. I start treatment mid-December. 7 weeks of radiotherapy...
Friday November 14th I had a planning appointment, at the Christie in Oldham. The team there were very helpful and encouraging. However the unpleasant part was being fitted with a face mask. As a complication I have had COPD for many years. Because of...
Good morning all, I hope you are all well. I feel like I am in the later stages of recovery post-treatment for stage 3 orophangeal cancer. I had 35 rounds of radiotherapy and 7/8 cycles of chemotherapy. I have since found out that my saliva glands...
