Taste

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My taste has been affected significantly, after only one week of CRT. Most things taste of soap!

I am trying to identify what is common between the most challenging foods.

For some foods, and in my case, it may be flour.

Any thoughts?

  • I managed to avoid chemo but others on here suggest avoiding metal cutlery, rinsing in salt/soda bic before you eat and sucking mints/ lemon sweets in between meals (sugar free)

    Cisplatin actually directly affects the taste buds in your tongue making the cells die quicker 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Trial and error ....try to keep challenging yourself with different foods during CRT treatment and recovery, taste and appetite should start to re-appear around 6-12 months...some recover sooner.

    Michael

  • Not sure this was mentioned!

  • The issues seem to have hit you really early on into treatment.  That sucks and I know it has been a major factor in your decision.

    We all seem to go in different directions regarding taste.  During treatment and the early days of recovery it seems like there are 2 major "tastes" - everything either tasted metallic or of salt.  I went down the salt route.  Later on I have learned that sugar in food - although necessary - does not help our taste.  A couple of mouthfuls of some sweet pudding and my taste still shuts down even after nearly 2 years.   I still can't stand even a whiff of chilli without my throat going into spasm

    All you can do is experiment and learn what works for you at this stage and progress from there.  It is frustrating

    Peter
    See my profile for more details of my convoluted journey