Food

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Hi hope all is OK with everyone just update operation 9/9/25 total laryngectomy neck dissection. Finding it difficult at minute due to not eating can't smell or taste not sleeping dizzy spells can not have voice TEP due to very serious acid reflux forever getting blood test for loe electrolytes kidneys Sorry for moaning but this does get me down .Now I have to go for assessment to see how fit I am great 

  • Hi Scamp - this is the place to safely moan!  Sounds like you are having a tough time of it.  I just hope your clinicians can get on top of the issues soon and you can see a way forward to better times.

    Peter
    See my profile for more details of my convoluted journey
  • Not sure mate all appointment next year so just grin and bear it hope you ok

  • Hi, Scamp, no apology needed, you're welcome to have a good old moan whenever you want to. Hopefully your team will be able to come up with something to make things a little better for you. We are all here for each other, post as often as you want. 

    Ray.

  • Hi  sorry to hear you are still feeling so unwell. My husband is still in hospital after what sounds like pretty much the same operation on 29th October. He has a very small leak in the reconstruction which is slow to heal because he had radiotherapy and dissection to the other side of the neck 10 years ago for tongue cancer. Like you, he hasn’t been given a voice TEP. He isn’t feeling too bad physically but he is frustrated at still being in hospital after 5 weeks! His world  feels very small and restricted compared with pre surgery and yours must too. I hope they get to the bottom of your symptoms soon, and find a way to help you sleep better as I am sure better sleep will help to sort out the other problems.