Hello all, I wonder if anyone has had/is having a similar experience to me; the side effects are getting the better of me now. I completed chemo (2 x cisplatin cycles) & radiotherapy (30 fractions) for T4N1 P16 positive HPV driven right tonsil cancer in Dec 2025. Admitted to hospital mid Dec 2025 with severe neutropenia and sepsis, caused by infected neck burns as a result of radiotherapy. Recovery since then has been tough and slow. I'm still not tolerating much diet, had a nasogastic tube inserted 10 days ago to address nutritional needs and weight loss, still need regular morphine, still fatigued, my tongue and mouth both remain ulcerated and I am still experiencing pronounced hair thinning which I find very distressing. Doctors and specialist nurses tell me its still early days but it doesn't feel like early days, it feels as if I've been like this now for an eternity and the literature I was given concentrates on the initial 6 weeks post treatment but I'm beyond that without much improvement. I sincerely hope no-one is going through the same, but if anyone has had a similar experience I would greatly appreciate an indication of how long I can expect these side effects to persist. I realise everyone is different and responds differently to treatment but even a general idea would be so welcome. Just had a PET scan to determine the tumour response to treatment so hopefully I'll get some good news fairly soon. Many, many thanks in advance. Boscobel
