Fibrosis in the throat?

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I am 14 months post CRT tonsil cancer. Although I realise swallowing problems is common with this type of treatment, I am concerned that mine has only really started now 14 months post treatment.  Has anyone else had this ? I'm quite concerned about this.  I was seen by my oncologist 3 weeks ago and I had a nososcopy and nothing was mentioned, apart that things looked okay, although at that appointment I didn't mention anything.  I've  been hoping it will go away, but it hasn't.  It's on the side I had the treatment. 

Many thanks as always

Angela

  • It's on the side I had the treatment. 

    What are you feeling? Are you finding it hard to swallow? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Yes. I can swallow but it is taking it's time getting down,  as if its stuck there for a while.

  • Maybe it’s just that you’re not producing enough saliva to ease the food bolus down via weakened swallow muscles. I find I can swallow dry stuff but a bit always gets left behind 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you Dani. And thank you so much for all your encouragement and inspiration you give to us all here.

    Angela

  • You are very welcome 

    It's hard encountering all these little hiccups. You always think the worst but it rarely happens. Keep doing your swallow exercises. They are for life

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Angela. Like Dani says  keep doing the swallow exercise like the duraphat toothpaste they are for life. I do mine without even thinking  about it. I can struggle with the silliest  things  eg mince  especially and petit pois peas. I always have a warm drink handy  at tea time for those just in case moments. There is little sense in what we can eat example I’ve had cheese and tuc  crackers today at lunchtime not an issue ,I can eat crisps but give  me a spoonful of peas and they in can stick in my throat. Bacon sandwiches aren’t great but I keep on try8ng I’m 7 years now post treatment. Next time you see consultant just mention to him. I do have a slight touch of fibrosis on heavily radiated side , it’s been there since year 2 hasn’t got any worse I keep up neck exercises keep fit as well 

    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • 30 months since Chemoradiotherapy treatment finished for head and neck cancer...my swallowing is OK but there are still some things that are difficult to swallow, paracetamol is prescribed in soluble form, statins taken in lower dose tablets to make swallowing easier, other meds have to be crushed, some foods have to be cut into small pieces, washed down with plenty of liquids, others are a no go...new normal?

    Michael

  • Thank you. Oh well. As you say.  The new normal.  Finding it all so very difficult and the depression and sadness accompanying it quite overwhelming.  Feel very ashamed of feeling like this,  especially reading the terrible struggles many others are going through.

  • Youre  welcome it does get better. I never thought I would  go out without my trusty  water bottle but I can do. It’s early days for you although you might not think so. I’m living a fab life. 

    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/