It’s interesting in that I reviewed my previous posts and replies during my journey. During this insightful activity not only was I able to see where I was at but also see the great resources in this forum. I can’t thank you all enough. I am now 7 months post treatment. I’ve been through 3 follow up pet scans with positive news, I’m fortunate. I remember posting about the unending side effects and the mental challenges every time something new and unusual occurred. Thankfully there were people here that reminded me that I was still very early in recovery (still am at 7 months…) and that things would get better. As example, I can now eat with limited discomfort but spicy food is completely off the table. I am starting to put weight back on. My taste is at 80%. My mental fog is almost completely gone. The nerves in my neck that extend down my arms have settled down to the occasional shooting pain. Dry mouth will probably be a forever thing but I’ve adapted (water is my best friend). The pain that was in my left ear down the side of my face is gone. The point being that the benefit of this forum cannot be understated, the sharing of experiences have made this journey more bearable. To the people just beginning their journey, use the forum, share your concerns and questions. There is no such thing as a silly or uncomfortable question or experience to share out. We are all brothers and sisters in arms here. To the others who gave, and give, the listening ears and offered well received feedback….THANK YOU!
Don
Canada.
Thank you so much for your update. A lived experience is second to none you're right there. You are doing so well and that's good to read. Keep going. Even the dry mouth gets a little better.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
