Hi All
Happy new year (& there must have been times we have all wondered if we would say that again - so very thankful)
I am nearly 3 years post treatment & all is pretty good, thanks to great hospital staff, friends & family &, I truly believe, a positive mental attitude. (& obviously you guys xxx)
Eating is pretty good - I have just eaten my sandwich, albeit I do need a cuppa soup to help it along but can eat most things (Red wine is still a NO however!)
Just a couple of small things I would like to ask, if you could offer any insight? (compared to peoples actual, real problems, these points seem trite.
As I say my concerns are ridiculous compared to many on here for which I am thankful & very humble but that said anyone at the start of the journey, which is long & tough please note that I was there & now my concern is about my neck cracking, so stick with it & you to will be a moany sod like me!
I wish you all luck & good health wherever you are on this journey X
Neck exercises - I still do these 5 times a week, is it something I need to continue with or do less or more of?
Sorry can’t help with the other two but this one yes. Neck exercises once or twice a day PLUS all your swallow and jaw exercises once a day for ever. I still do mine seven years later.
I wish you all luck & good health wherever you are on this journey X
You too… hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I can say that I get the neck spasms. These come from my dissection and are directly related to the surgical site. They predate CRT by many years. I have learned to control them now and they do not worry me. I just relax and they pass. They are not frequent , maybe a couple of times a month. As to the other 2 issues I have not experienced either the cracking or continue doing the physio exercises from years ago. However, I have always tried to incorporate any physio into the way I normally act rather than a discrete activity so maybe I am doing them subconsciously.
Glad to hear that you are doing so well. I did get the neck spasms for a while. It would happen out of the blue depending on how I had turned my neck and then I would massage it and it would seem to twang and relax. It did go away after a while but was rather annoying at the time. Don't get the neck cracking but completely unrelated my spine does a crack when I get in and out of the car sometimes. Nothing to do with anything so maybe your neck cracking is the same.
Lyn
Sophie66
Hi yes to neck exercises and swallow/jaw exercises. They are for life I do mine without even noticing they fit into my daily schedules just like brushing my teeth.
cant help with neck cracking but I do have a small amount of neck fibrosis it doesn’t effect my daily living it’s manageable it’s not progressed over the years.
best wishes
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007