Week 2 complete

Hi. Well done in getting this far.

My advice is that when codeine stops working make sure you tell your radiographers  to provide you with something stronger  

If you are on codeine you need laxatives, Movicol or Laxido  

Different trusts provide different moisturisers  as long as they are pretty emollient and fragrance free anything that suits you will do  I was prescribed Diprobase but found it too greasy so bought my own Cetraben  I used pure aloe Vera gel straight after each session. I hardly burned at all, skin just got a little red and flaky  

Do you have a feeding tube fitted? 

Delaney said:

Just wanted to ask about flamigel  RT- the radiographer told me not to use it or aloe Vera just use E45?

WOW, they told you NOT to use Flamigel?? I used it, even got some from my radiotherapy team, when I asked for more.. skin didn't even peel after treatment.. it went incredibly dark, as you can imagine, but I suffered no problems with it... I kept my mask, named it Jason ( Friday the 13th ).. And if you haven't read it already, you might get some tips/ideas from this.. Helpful tips for those about to start treatment.. - Macmillan Online Community

Beau Chapeau said:

WOW, they told you NOT to use Flamigel??

Yes, I thought that a bit strange. 

Hi Dani, they’ve given me laxido to take.  Yes, I have had my peg fitted and I’m just introducing the codine now.  Xx

I bought the flamigel after reading so many positive reviews on it on here.  I’m going to ask someone else next week about it.  Il take a look at the link - thanks xxxx

Delaney said:

I bought the flamigel after reading so many positive reviews on it on here.

hopefully, you should also be able to get it on prescription.. definitely ask your team.. if no joy, have a word with your GP.

I was given Epimax cream by RT team to use as required, after every session I was asked if I had enough to last, if not I wad given loads of tubes.

I was on Co-Codamol, Difflam and Oramorph after week 3, after week 5 I was give slow release morphine to take twice a day, my PEG feeding tube was being well used.

2 years out now and doing well.

Hello Delaney, just popping up to wish you well - it sounds like you're coping brilliantly. Hang in there - not too long to go now.

Sounds like you’re on top of things. Use the peg when you need to. No point in struggling. Hugs 

Thanks Micky, I started with the codine today but took one, think I’m going to have to take two when next due as doesn’t seem to do much!! Xxx