Feeling low

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After all my treatment RT I have remained positive for every step, now I'm just waiting to go back to my local hospital hopefully have my pet scan soon n fingers crossed I will get the all clear finally.

But I seem to have suddenly run out of positivity, I feel so low & lost I don't know what to do with that.

I just feel so sad xx

  • I suppose we get it because we’ve all, to some degree, been there. It doesn’t necessarily make sense , but sometimes things just get on top of us.  Hope you feel better soon.

    Liz

  • thats whats causing my fatigue and feeling crap and low all the time x

    Undoubtedly is  All the symptoms of hypothyroidism 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • this is what iam hoping so once they got the dose right and the thyroxine kicks in i hoping this will solve it x

  • I could have written your post myself - I’m two weeks post RT and have had some real low moods over the past few days and I’ve been sooo positive all the way through! 

    yesterday I planned a walk a day with different friends and being out in the sun made me feel a bit better. 

    4 months to wait for the PET scan so I decided I can’t be miserable the whole time. I jokingly said to my friend I need to make the most of the time I have left and she told me off JoyTwo hearts

    I hope something happens to pick you up x

  • Well, course you do. You've toed the line and followed a stringent and structured treatment regimen where your only thoughts probably revolved round coping with side effects and just getting through the whole damn thing. Now you feel better, don't have to go to the hospital every day and are lost and disorientated. It helped me to find 'substitutes' for structuring my day, walks, light gardening, planning things to look forward to. Don't worry too much about the pet scan, premature scans will not give accurate results. Have a great evening!

    Patrick xx

  • Hi, thanks for sharing. They say its a journey but I really didn't understand what that meant before I was down the road on my version of that journey. I finished my chemoradiotherapy treatment mid October last year. Had my first follow up PET Scan in January and everything seems good so far. Initially I felt relieved and incredibly grateful obviously but as the weeks have passed my initial positive feelings seem to have drained away and now feeling quite low. I can't shake off the what if's. What I'm trying to do is just break things down into small portions, focus on the present, and today I feel fine. I'm trying not to think of what might happen in a month / two months or next year. Easier said than done though.  I think that I should be feeling much more relieved and optimistic but wonder if that is actually a realistic possibility and despite everything the consultant and oncologist and their teams have done for me (and they have been fantastic) my positivity meter is showing close to empty. I feel that I'm letting my family down as they are happy and relieved but I feel like a real party pooper at times. 

    Sorry I cant give you any wise words that will give you a lift, but maybe what we are feeling is more 'normal' that we think. Hopefully the fog starts to lift again soon.

    My very best wishes to you 

  • I can't shake off the what if's.

    Have a read of this. It answers a few of your doubts 

    https://workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you so much for that, I found it really helpful. I have printed a copy off so I can keep referring back to it as and when needed. 

  • Hi I printed a few copies and gave to family and friends we all recover at our own pace. Remember treatment is hard but it kills cancer so it’s not easy. People around us forget once treatment is finished. Hence the article is a good one. 

    Hazel xx 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/