Feeling low

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After all my treatment RT I have remained positive for every step, now I'm just waiting to go back to my local hospital hopefully have my pet scan soon n fingers crossed I will get the all clear finally.

But I seem to have suddenly run out of positivity, I feel so low & lost I don't know what to do with that.

I just feel so sad xx

  • Hi Liz. Yes I know exactly how you feel. The wrap around care has gone. You were prepared for that but have run out of steam. Now there is anxiety about the scan. It’s a waiting game 

    This article may give you some pointers 

    https://workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Loopyliz, it's normal to feel like this from time to time, after what we have to go through it's not surprising. The treatment does knock us about, and when you think back on what has just happened, can make you feel a bit low, I know it did me. Recovery is a bumpy road, with its ups and downs. Fingers crossed for your scan.

    Ray

  • Hi we. Are looked after seen by medical people daily for what’s seems like months then we are cast out to the wilderness it will pass in meantime  read the link Dani has sent you. Plus look at our blogs there’s a fab life to be had afterwards. I’m 7 years post and sometimes it seems like it happened to someone else ( well apart from dry mouth at nighttime and no spicy food ) 

    keep,in touch on here we’re all ready to help

    hugs Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Thank you all, after being positive through every step, the people I know that have supported me don't understand why now it's almost over (hopefully) I feel this way.

    U guys are an amazing bunch, who just get it.

    I'm so grateful,  I think you have kept me sane 

  • iam so sorry you feel like this but iam exactly the same i finished treatment 5 months ago and after a while i felt the same and still do but i just found out my thyroid has been damaged and my thyroid is now underactive so iam wondering if this is not helping with how i feel just started on thyroxine medication so waiting for it to kick in and see if it helps as iam told it does help so mayb worth asking g p for blood test xx always happy to chat any time xx

  • Hi yes thyroid issues are a known side effect of our treatment. Glad yours as been picked up I’ve a few friends on medication for a few of them it took a while for the dosage to be sorted. 
    Timely reminder for everyone annual bloods fir thyroid need to be taken first TSH and T4 levels. 
    I have a reoccurring reminder in my phone. To check 

    Hugs Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • iam a bit upset as iam the only female on my mums side of the family who has no thyroid problem it went to my 1st born by the time he was 17 he had to have his totally removed and now i also am on thyroxine they call ourselves the thyroxine crew and now ive joined them after managing to avoid it until now lol x

  • lnow at least you’re no longer  the odd one out if that’s any consolation . 

    my friends who are in it are perfectly fine now dosages are sorted. 

    Hazel xx 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • yeah iam not to worried about thyroid iam used to that so many in my family all have probs i just hoping thats whats causing my fatigue and feeling crap and low all the time x

  • Hi it’s fairly common with our treatment reckon you’ll know soon enough. Fingers x for you. 

    Hazel xx

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.