After all my treatment RT I have remained positive for every step, now I'm just waiting to go back to my local hospital hopefully have my pet scan soon n fingers crossed I will get the all clear finally.
But I seem to have suddenly run out of positivity, I feel so low & lost I don't know what to do with that.
I just feel so sad xx
Hi Liz. Yes I know exactly how you feel. The wrap around care has gone. You were prepared for that but have run out of steam. Now there is anxiety about the scan. It’s a waiting game
This article may give you some pointers
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Loopyliz, it's normal to feel like this from time to time, after what we have to go through it's not surprising. The treatment does knock us about, and when you think back on what has just happened, can make you feel a bit low, I know it did me. Recovery is a bumpy road, with its ups and downs. Fingers crossed for your scan.
Ray
Hi we. Are looked after seen by medical people daily for what’s seems like months then we are cast out to the wilderness it will pass in meantime read the link Dani has sent you. Plus look at our blogs there’s a fab life to be had afterwards. I’m 7 years post and sometimes it seems like it happened to someone else ( well apart from dry mouth at nighttime and no spicy food )
keep,in touch on here we’re all ready to help
hugs Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
iam so sorry you feel like this but iam exactly the same i finished treatment 5 months ago and after a while i felt the same and still do but i just found out my thyroid has been damaged and my thyroid is now underactive so iam wondering if this is not helping with how i feel just started on thyroxine medication so waiting for it to kick in and see if it helps as iam told it does help so mayb worth asking g p for blood test xx always happy to chat any time xx
Hi yes thyroid issues are a known side effect of our treatment. Glad yours as been picked up I’ve a few friends on medication for a few of them it took a while for the dosage to be sorted.
Timely reminder for everyone annual bloods fir thyroid need to be taken first TSH and T4 levels.
I have a reoccurring reminder in my phone. To check
Hugs Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
iam a bit upset as iam the only female on my mums side of the family who has no thyroid problem it went to my 1st born by the time he was 17 he had to have his totally removed and now i also am on thyroxine they call ourselves the thyroxine crew and now ive joined them after managing to avoid it until now lol x
lnow at least you’re no longer the odd one out if that’s any consolation .
my friends who are in it are perfectly fine now dosages are sorted.
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
yeah iam not to worried about thyroid iam used to that so many in my family all have probs i just hoping thats whats causing my fatigue and feeling crap and low all the time x
Hi it’s fairly common with our treatment reckon you’ll know soon enough. Fingers x for you.
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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