Has anyone any experience of a recurrence of base of tongue cancer .. finished treatment 2 years ago. Need some positive pointers please
Hi. I thought I’d pop in a comment as nobody else has picked this up. I know you posted a query a week ago but I’m hoping somebody else might pick it up. I’ll echo Hazels comment from that thread. Immunotherapy has had a deal of success. We have a forum member who had 2 years of immunotherapy and is now over two years clear of his last infusion
We also have members who are involved in trials so one of them might spot your post
What has your team suggested?
Thank you Dani .. l have been referred to the royal marsden .. my Norwich team thought that would be a way forward in my case.. Norwich hospital hasn’t got the best care unfortunately.. l have read there is a brand new immunotherapy drug specifically for heag and neck recurrence..hopefully something positive to come. Regards, coast
Hi I haven’t first hand experience but the reoccurrence clinics at royal Marsden is world class. Sorry you e found yourself in this position.
this us one if the new trials for hpv reoccurrence hnc
there are others Prof Kevin Harrington is one of the leading experts but there are others there.
Hope they can help you.
best wishes.
Hazel
Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.
l have been referred to the royal marsden .. my Norwich team thought that would be a way forward in my case.. Norwich hospital hasn’t got the best care unfortunately.. l have read there is a brand new immunotherapy drug specifically for heag and neck recurrence..hopefully something positive to come. Regards, coast
Excellent
Prof Harrington at the Marsden is involved with targeted antibody injections like amivantamab in the OrigAMI-4 trial,
Chin up...you are in very good hands
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