Recurrence of base of tongue cancer

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Has anyone any experience of a recurrence of base  of tongue cancer .. finished treatment 2 years ago. Need some positive pointers please 

  • Hi. I thought I’d pop in a comment as nobody else has picked this up. I know you posted a query a week ago but I’m hoping somebody else might pick it up. I’ll echo Hazels comment from that thread. Immunotherapy has had a deal of success. We have a forum member who had 2 years of immunotherapy and is now over two years clear of his last infusion 

    We also have members who are involved in trials so one of them might spot your post  


    What has your team suggested? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you Dani .. l have been referred to the royal marsden .. my Norwich team thought that would be a way forward in my case.. Norwich hospital hasn’t got the best care unfortunately.. l have read there is a brand new immunotherapy drug specifically for heag and neck recurrence..hopefully something positive to come. Regards, coast 

  • Hi I haven’t first hand experience but the reoccurrence clinics at royal Marsden is world class. Sorry you e found yourself in this position. 
    this us one if the new trials for hpv reoccurrence hnc 

    https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-of-bnt113-for-head-and-neck-cancer-ahead-merit

    there are others Prof Kevin Harrington is one of the leading experts but there are others there. 
    Hope they can help you. 
    best wishes. 

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • l have been referred to the royal marsden .. my Norwich team thought that would be a way forward in my case.. Norwich hospital hasn’t got the best care unfortunately.. l have read there is a brand new immunotherapy drug specifically for heag and neck recurrence..hopefully something positive to come. Regards, coast 

    Excellent

    Prof Harrington at the Marsden is involved with targeted antibody injections like amivantamab in the OrigAMI-4 trial,

    Chin up...you are in very good hands

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you everyone.xx