Struggling

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Hi ,

I've recently started getting light headed when standing up, I'm not sure if this is down to my stress levels or onset of another side effect.

I've finished my 11th week today post treatment and not sure where along the recovery line I should be.

I worry about every little lump that appears. I saw my oncologist last week and mentioned a lump on my treatment side , she felt and said that all lumps aren't cancer Mark ! and wasn't concerned at all , my wife says I should trust the pros they know what they are doing. I'm still not eating . My liquid nutrition makes me nauseous , just got date for pet /CT 10th March ,then follow up with oncologist April 3rd . I can't believe how much I feel the cold now ,never used to bother me!

I can't break out of this vicious circle worrying about things!! Am I over reacting ? Any advice on these issues would be appreciated,just to help me through.

Mark x

  • Hi Spider3,I finished treatment at the end of November 2024 and the winter felt quite a bit colder. in fact I am seating at home with a winter hat on.I don’t think I saw anyone mention about the emotional up and downs that happen when we start coming off of all the medication and that can linger for a little while.I don’t think your overreacting it’s just all part of are recovery.Keep trying different foods to find what easier to eat and try and get some exercise in.I still have days I feel just sick but there days I do feel Great.Thanks for all the post you make, I believe it helps a lot of people that are feeling the same way.

  • Hi Hazel, what sort of food did you eat for your 6 plates per day. I’m so bored with eggs and weetabix now after 5 months! 
    I’ve been cooking for my husband but I generally eat a couple of forkfuls or just bin it! 
    Sue x

    See profile for treatment stages

  • I was very much the same.  I found that our ‘normal’ pattern of food just wasn’t working.  I cooked for my husband but also couldn’t manage to eat much of it (I’m sure there’s a joke in there about my cooking…).

    I found what worked for me was: M&S lasagne….the standard one, not the ‘best ever’, pretty much any sort of fish which for some reason I find easier than meat, cauliflower cheese, pasta generally as long as with a smooth rather than nobbly sauce, home made soups thickened up with lentils and blitzed to a pulp and fortified with cream and, depending on the soup, cheese and,  counterintuitively, fillet steak….but it had to be just shown the pan and very rare otherwise it was inedible.  For some reason duck is for me easier than chicken which is a nightmare.  Diet was ( and still is in some areas) pretty boring, but getting there. Managed a Cornish pasty last night helped with a glass of water which I wasn’t expecting to get through. Onwards and upwards.

    The advantage of most of the above is that I could eat what I wanted to and put the rest in the microwave later on.

    How are you doing?  I think I managed to delete you inadvertently from my ‘friend ‘ not sure what happened.  I’ll send a request through again. Probably finger trouble.  Technology is not generally my friend!

    Take care

    Liz

  • Thanks for your reply Liz I’ve sent you a PM although I can’t see you on my contacts either x

    See profile for treatment stages

  • Hi Sue breakfast was always my easy meal porridge honey ( beekeepers not supermarket ) then around 11 endure for calories with a coffee dipped a Jaffa cake  couldn’t drink coffee for 6 months. Lunch was either a fruit tracks lots of butter toasted with grilled cheese cut into quarters nibbled from inside to crusts tin of peaches or a smoothie made with ensure. Mid afternoon smashed avocado poached egg on Cheshire bread. If hubby was having something I could eat round use a tea size plate Yorkshire pudding n stew or a ready made lasagna etc 7 pm home made soup gradually adding more seasonings 9 pm ensure. I found spreading it out through the days grilled. I are bananas every day as o could slice them put in smoothies etc.  

    by Christmas 4 months later I days a dndll plate if Christmas dinner. There’s tips on my blog 

    I Aimed  force 2500 caloties  tge toasted  tea fair was 500 I couldn’t face big meals. A rare steak shared with hubby ans sweet pirate greyed. Potatoes were hard rice impossible. at the allotment now, so I’ll have a think when I get home when I getv home 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • That’s great advice thanks so much Hazel x

    See profile for treatment stages

  • Former Member
    Former Member in reply to SueEssex

    My small meals to start with were minced beef, mash and gravy...couldn't taste it but it did kick start my appetite...then taste buds

  • I do cook shepherds pie but have enough after a couple of mouthfuls. Hopefully I will eventually get an appetite without constant sickness.

    thanks for your reply.

    Sue

    See profile for treatment stages

  • Hi Sue , I get that constant sickness no matter what I try to eat ,and it kills your appetite! 

  • I get that constant sickness no matter what I try to eat ,

    It was the same for me. Stomach had shrunk. I had to force it down 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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