Struggling

Hi Mark light head ended us a common side  effect it goes as quickly as it came for me. I just learned to get up slowly from a sitting position or when getting up. My blood pressure did drop as well. I am in a 5 mg blood pressure tablet and continued to take it as consultant advised me to. The chemo and radiotherapy can alter our metabolism so please try to stop worrying. 
It’s early days for you try and relax and go with the flow trust yiur team and trust the treatment. There’s loot of us in here thriving afterward. i Was  61 when I went through it now 68 and living a fab life. You’ll worry yourself silly. Find something to distract yourself and yes please start eating forget about any pleasure from food treat it as fuel your car needs it to run and you need it to run your body  

I ate 6 small plates of food a day as we tend nit to have any appetite for many months but you will progress once you  can get food inside yo. How’s the tablet withdrawal going?

 
have a read of this 

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

hugs 

Hazel x

Hi Hazel,

Thanks for your reply x ,Think I'm nearly over the worst of tablet problems,just a few bowel issues still ,but I'm sure it will settle . I take a blood pressure tablet also , as I have hereditary high BP. Thanks for your reassurance it does help . I get scared of falling into some kind of depression. Trying to keep a positive mind is tough , Thanks for this forum x 

Spider3 said:

I can't believe how much I feel the cold now ,never used to bother me!

I used to go to bed with PJs Socks a fleece and a hat. I know how you feel. 
Anxiety over treatment failure and recurrence is normal. My oncologist told me me it would lessen but I would just have to live with it. No punches pulled. So I just got on with it. 
I have a three week rule. Anything new that lasts longer than three weeks gets investigated. 

Spider3 said:

Am I over reacting ?

No. That’s just the way your recovery is going You just have to weather it. 

Hi Mark

I had Chemoradio....felt that  had to give up motorcycling due to occasional dizziness which surfaced after treatment...still get the odd wee dizzy turn if I stand up too quickly....on meds for Raynaud's Syndrome which became more pronounced after CRT....just bought some really cosy gloves today...and hand warmers....I certainly feel the cold more nowadays...Heating bills have gotten seriously higher...

We tend to worry about every little niggle....but this lessens over time.

Peter

Dear Mark

It is perfectly normal to worry and once you have had cancer we always worry that it might come back. However you need to trust your team and you need to try to stop your worries take over and control you all the time.  If these negative thoughts invade you too much, try to get up and do something that you would enjoy.  You are in good hands.  Have you had counselling sessions? Try to focus on building your strength to help your body (and mind) deal with the side effects of the treatment. Don't worry about where you should be on the recovery line as we are all so different, there is no rule fits all. Take each day at a time. Recovery is a long process but the word itself RECOVERY is magic? Just give your body and mind time. Do you feed yourself using your peg? It is going to be a while for you to enjoy food again but the most important thing is that you get the nutrients your body needs. It needs fuel as you cannot run on an empty tank. I never felt the cold either before my treatment but I bought myself a lovely onesie and lovely blankets to keep me warm. Not a problem at all in the scale of things. To occupy myself I binge watched series on Netflix and Amazon, wrote a diary (to embrace any positive aspect of my life - sunshine, family, friends, and took up crochet (not suggesting that you do the same...) but is there anything that you would enjoy trying and would relax you? I also tried to go for short walks. 

I am pleased that you come on here to express how you feel. We all know what you are going through and we are all here for you. 

Sending you loads of positive vibes. 

Fab1

I have BP issues....One thing that I use regularly is a medical grade oximeter...handy tool

Hi Mark. I’ve been on this forum  7 years and it’s not unusual that head and neck cancer patients have a course of mild any depressants there’s nothing wrong if you do. Our treatments hard maybe a trio o ti see gp ? Xx

hugs 

Hazel 

Hi Mark everything you have said, is normal after what you have been through, the treatment is a real assault on our bodies which takes a lot of getting over, so recovery is up and down. It's perfectly natural to worry about these niggles we get, I still worry 7 years on. You will feel a lot better once you have you scan done. 

Ray.

Thanks Fab1 great words x

I found that using a heated throw whilst sitting at home kept heating bills within bounds and saved my husband from heat stroke. You can get the sort with sleeves which makes reading etc easier.  Not much good if you’re moving around a lot though.

Liz