Finally back home 5 weeks later. Exhausted.
The op was longer and more serious than they thought. 16 hours in theatre followed by 5 days in intensive care. Finally made it to ward only to be sent back hours later to ICU as breathing not right. Had serious chest infection. That cleared up and made it back to ward a couple of days later only to have sudden decline and be sent back to ICU. Suddenly whisked off by staff in full PPE to an isolation room with the info that I had now contracted flu! Spent 5 days there, then went to High Dependency Unit for a few days, than back to ward on the 3rd attempt. Eventually recovery commenced but the original 2 to 3 week estimate stretched to 5 weeks and I was stuck there over Xmas and the New Year.
It's been a challenging time emotionally and physically. I'll write all about it in my blog when I'm not so tired. My late father always used to encourage me to to find something amusing in a difficult situation. So I'll leave you with the tale about the night a nurse messed up my feeding pump so that the protein drink was pumping all over the bed and not into my tummy. I'd been asleep, and by the time I awoke to raise the alarm me and the bed were smothered in it, and it was dripping all over the floor. The clean up took hours and the person responsible was off duty by then, and were not very popular with their colleagues!
Well done for surviving such a challenge.
Good to hear you are home
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Margaret. You have had a time of it but congratulations that you are now home. I wish you an uneventful recovery after all the drama. Your story about the nurse and the feeding pump reminded me of something that happened to me when I was in hospital after one of my ops for jaw cancer. A student nurse was sent in to take my blood pressure. Obviously his first placement as he put the blood pressure cuff on my arm inside out and the cuff blew up on the outside instead of the inside. I looked like I had a marshmallow attached to my arm and obviously no blood pressure reading could be made. The poor student was so embarrassed but I bet he never made that mistake again.
Best wishes for your recovery
Lyn
Sophie66
Thanks Lyn. That story made me laugh, we need humour to get us through the difficult days. I did have another amusing thing happened. My nebuliser was steaming so much it set off the smoke alarm. Next thing I knew two fireman had arrived in my room!
Hi Margaret. Glad you’re home now time to recover.
we’re all here if yiu need support
Best wishes
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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