Hi everyone, me again I think I'm struggling mentally with it all , Ive lost my mojo 10 weeks post treatment and worried that I'm going in the wrong direction, is this natural or am I the only one ? how do you cope with not thinking about cancer and side effects etc. did anyone else feel like this on their journey. I'm trying to be strong for my wife but it's all hard. My wife says we should start doing short walks to build up my strength as I feel so week not doing nothing. This week has been a bad one ,trying to kick myself out of it. In a silly way I hope I'm not the only one that has felt like this and hopefully it gets better ?
Hi Mark
Physically and mentally we take a lot of punishment...at times I just wanted to go into a dark room and hide...a lot must have felt this way....do not suffer in silence talk to your CNS/GP they will be very understanding...it does get better with time....it's a tough gig....hang in there
Peter
Unfortunately, recovery can be a long-drawn-out thing for some and can't be rushed. However, you are still early in your recovery, so it's best to take one day at a time. Your wife is right having a short walk each day is a good idea, just a short one to start, then a bit further each time, it may tire you out at first, but it will build you up. Make sure you are drinking plenty of water and try to eat as much as you can. You will get there, you just have to give your body the time it needs to heal.
Ray.
I was in a difficult position, recovery is not quite as straightforward for some, my CRT treatment finished in early June 2023...I had been in hospital with weight loss issues...had a hernia which should have been repaired pre treatment, it was giving me a lot of pain...September before I was fit enough for hernia surgery...all of this added to an already stressful situation......but things did get better....Went to Tenerife in late October...the world seemed a better place
This week has been a bad one ,trying to kick myself out of it. In a silly way I hope I'm not the only one that has felt like this and hopefully it gets better ?
It does get better but we take such a hammering that recovery is slow.
I'm trying to be strong for my wife but it's all hard. My wife says we should start doing short walks
How are you being “strong” ? Does Mrs Spider expect more of you because you are hiding how you feel?
Short walk is good. Round the garden is a good start. Out of the front door to the next lamp post then another and another again. You get my drift. A little more each day.
My radiographers told me to force myself out just a little more each day.
Finally, read this and let your wife have a look. It speaks volumes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Did you ever feel like I do now ? I'm scared I'm the only one
Yes. Scared of the immediate future. Scared I had done all this for nothing. Exhausted beyond belief in mind and body
What I meant was ,Sharon has been so strong for me ,I wanted to be strong to give her a break
It’s what being a loving partner is about. You and Sharon are lucky to have each other. Let her hold you if you still need holding. She will understand. You would if the tables were turned.
Hugs.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I remember when I got home all I did was crash on the settee, and my wife would try to get me to try a few mouthfuls of food.. my sister visited me one day and I was just so out of sorts that I know it upset her.. You need to heal and that will take time, so don't rush it.. your body will let you know when you can start doing more..So don't beat yourself up, you've been battling cancer, not getting over a cold.
Loz (61)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Hi Remember it’s a marathon not a sprint. Treatments hard but remember it kills cancer. Don’t waste time thinking of what if it comes back put that thought away and concentrate on the here and now. A little walk will be good for you both a walk round the garden then each day a little further into the nearest lampost then the next one before you know it you’ll be then end of the street. Then a bit further each day
Again in the odd ball we flew to Spain week 8 it was my hubbies 60 th I wasn’t going on holiday just to our apartment but it was hard yet I did it.
What you’re in is a tight bubble and you’re scared of breaking out if it. Just try tomorrow round the garden you’ll feel the benefit.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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