Hi all
I can’t believe I’m saying it, but thank goodness I’m 2 months post end of treatment, yahoo!!
I won’t go over how tough it’s been, I know you all know, blimey we’re a tough lot!!
However, I’m now at a stage where now I’m feeling a little better, I’d like to be able to drive again……it’s rather lonely living alone, and all the visitors have dwindled off. I’m currently taking 10mg of slow release ‘Oxycodone’ both morning and night ie 20mg in total a day. I reduced this with the agreement of my team on Saturday, from 30mg a day. The nurse suggested I go with 20mg for a week and see how get on, then reduce to maybe 15mg for a week and so on. Has anyone else gone through this, how long did it take to come off the ‘controlled’ meds……I’m so very desperate to drive again
Deborah x
I’m pushing and expecting too much of myself, thank you.
RT takes an awful lot out of the body. It resets the metabolism to speed healing for a start. Thats why we can eat lots of calories for a good while after treatment. You do have to pace yourself. It’s hard if you are used to being active
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
Yes, the reminder of these facts is good for me, thank you.
It is difficult, I’ve been very active my whole life, reared 3 active boys! This is just so alien to me.
One day at a time 
Hiya Cake Lover
personally I’d pull out with the option to join if that’s possible . 15 miles with a break the next day I’d say sure, but 5 days on the trot could really set you back. You’re also still on heavy meds. Could you do alternate days?
I was never on painkillers much. Didn’t need morphine, but took paracetamol maybe twice a day. Morning and evening. I stopped all pain relief 4 months ago
fingers crossed you can ditch the pain meds 
Yes, nightly b&b’s are booked but I’d rather just lose the money than harm my recovery . Stupidly it was planned in the early stages of my diagnosis, as a ‘something to look forward to’. As it’s something I would ordinarily do without training or trying too hard. Also and stupidly thinking, it would be ‘good for my recovery’……now I know of course, it’s the complete opposite that is required, rest, rest and more rest. Its finally sunk in 
Yes, it’s all a bit vague now, I’m not sure just how I ended up on them in all honesty, really wish I wasn’t though now. Hoping to be off them in 3 weeks or so
Not sure how much I need them for pain relief now, as much as addiction?
We don’t get addicted. Addiction starts in your head. What does happen though is that your body builds a tolerance which is why you have to withdraw slowly.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
You know we have little clue what we will face till we’re facing it. I entered this journey at my fittest. I was also gung ho to get out there and get moving. I did start light weight training within 3 weeks andter treatment and 1kg felt like I was holding a house in each hand . I learned to listen to my body and take a break every other day and only step and walk a couple of miles just so I felt I was doing something. Inactivity was the biggest mental issue I had to cope with . Since then my attitude has changed. Whereas before I was hard on myself , now I have a way more chill attitude. Took a while to get there.
As long as I can close my Apple Watch rings every day, I’m happy. 
We sound very similar, I’ve always driven myself hard too. Whilst in some things it’s a great trait, as we have learnt, sometimes it’s not. I look forward to hopefully being more relaxed and living a chilled future
I may have to ditch my Apple Watch….same 
