Weaning off pain relief!?

Hi Deborah 

I was on long acting morphine morning and evening and four or five doses of short acting oromorph in the day.

I knew what would happen but I just stopped. I lasted four hours. 

So....I stopped the the night time dose and halved the amount of oramorph for. week. Then I stopped the morning long acting dose and halved the oramorph yet again for a week. Then halved again and that was it. Three weeks

Oh and well done on getting through. You sound pretty chipper!

Ooh that is good to hear, thanks Dani

I’m doing ok, bit low now and again but only to be expected until the scan result.  Your blog helped a lot!!  I’d much rather be for armed……got a bit hairy at times, couple of hospital admissions annose feed for 8 weeks.  Worst was the mucus, absolutely nothing prepares you, nor can it.

come off very very slowly... I had to take meds for withdrawal symptoms... not fun, and the last thing you need after all you've been through..

Absolutely, thanks Loz

Halving the dose weekly till it’s negligible should do it but if in doubt check with your GP. 

Cake Lover said:

nose feed for 8 weeks.  Worst was the mucus, absolutely nothing prepares you, nor can it.

Yes my tube was in for 8 weeks. 
I had a few meltdowns in despair at how I couldn’t do anything about the relentlessness of it all. But the human body and mind are amazing. It all becomes a memory very quickly and soon not even that. 

Yes, I’m struggling with fatigue at the moment, felt like I had much more energy a couple of weeks ago?  Though eating enough is proving difficult, I’ll get there

Hi Deborah Well done in getting to the 8 weeks post treatment. Slow withdrawal of the opiates is the only way to go. But you are going the right way I was on cocodomol and gradually weaned from 30 mg to 15 mg the 8 mg ending up,on paracetamol only. 
As for the fatigue radiation n fatigue can’t be fought best advise I can give is listen to your body don’t fight it. I became the queen if the 20 minute Power Nap several times a day. Plus maintain sufficient nutrition and hydration that helps you recover. My dietician told me for my size 12 height 5 foot was 2500 calories each and every day which I did for 15 months then the weight started to come back so the cream cakes had to go .now there’s very little I can’t eat mostly spicy food for me 

Hazel 

Hi Deborah

I was on slow release morphine (2x daily) and Oramorph (as needed)....came off over 3-4 weeks.... a bit iffy to start with bit no real problems.

Well done and good luck

Peter

Hi Deborah

My eating and appetite are still improving 1 year+ after ChemoRadio.....takes a wee while ...trial and error with food....Chicken was tasteless until recently....my wife made roast chicken with stuffing last weekend....and I could finally taste and enjoy it....

Peter