Mum is sleeping all the time and hardly eating

Hi Shirleybop

 A discussion the hospice nurse about end of life care might be the way to go forward.....probably knows much more about the topic than most on here.

Peter

Shirleybop said:

Hello , me again not being able to find my previous post

Here 

https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/updates/276472/mum-is-sleeping-all-the-time

Peter is spot on. Leave this to the hospice nurse. 
My mother in law is receiving end of life care. She isn’t being given fentanyl because her doctor tells us that when the body begins to shut down fentanyl isn’t absorbed. She has oxycodone.
Best wishes. . 

Yes sobell house nurse is coming Thursday I just feel so desperate everyday , I don’t want mum suffering like this it’s just so cruel , I feel drained 

Hi Shirley. Sorry to hear this and please don’t berate your mum if she wants a cheeky fag let her we will never judge anyone, my mother in law was in hospice and they let her have a few every day out of the patio window on the terrace. Please talk with nurse it may be time for her to go into the hospice and that way you can visit or maybe stay longer and be her daughter instead of her carer. Just a thought. 

hugs Hazel xx

Hi Shirley

This is a really hard time for you, I am so sorry. You are such a supportive daughter and your mother must really appreciate the support you are giving her at the moment. Just keep on with what you are doing, giving her your love and support and keep holding her hand.  Steel yourself for what may happen and take the advice of the palliative care nurse. I felt so sad seeing my mum going down a very similar path before she passed on.

Sending you lots of hugs

Lyn

x

Hi Shirleybop

So sorry to hear about your mum. You are amazing in trying to look after her and be there for her on her journey. I also think that Peter is spot on, The hospice nurse would be the best person to support you and your mum . They do an amazing job and know exactly how to accompany patients and their families through such a painful and upsetting time. If you can, spend as much time as possible with your mum, talk to her and tell her how much you love her, even if she seems asleep. She needs to be at peace. The hospice will relieve you from your carer role and will enable you to accompany her in a much more peaceful way. 

My thoughts are with you. Sending you loads of hugs and love.

Fab1

Hi Shirleybop,

I did respond to your previous post which Dani has highlighted.  I just need to say that you are doing amazingly for your Mum. 

To answer your question,  yes her body is slowly shutting down. 

At this stage whatever she wants is not going to harm her.  I hope the hospice nurse can make her last few days comfortable.  Also, remember that the hospice are there not only for your Mum but also you as a family and they can offer lots of practical advice and support over the coming weeks.

My thoughts are with you and your family.

Thankyou , hospice nurse is coming tomorrow , mum was asleep all day yesterday and awake all night , I phoned GP this morning she said that’s normal ? Mum’s been asleep again all afternoon and no food today just sick :( Thankyou for kind words , I’m doing my best for my mum and I’ll look after her as best I can until the end x

Hugs, Shirley. You are doing a marvellous job, sad though it is. 

Thankyou  mums also got a cough I’ve noticed today I’m worrying we don’t have much time at all but I just don’t know … questions for hospice nurse tomorrow x Thankyou everyone this has been good for me to let it out here x