My son

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I just wanted to give an update on my son.

he has now had 4 sessions of chemo and next week will be his 7th and last week of radiotherapy. He is having trouble eating now and mostly just having the ensure drinks he had ulcers in his mouth and a sore throat but is being vet strong.im hoping after next week is over he will start to feel better. I’m not sure how long it takes for the soreness to go but im hoping not too long. Thank you for any support.

janet

  • Hi   Good to hear from you and that your son is nearly through treatment. 
    I can tell you that the radiation has a residual effect for two to three weeks and most of us find those weeks the worst. At least his daily visits will be over and he can hunker down. 
    I slept on the sofa for most of  those weeks but by the time six weeks had passed I was finding my way out of the pain and the tiredness. By 12 weeks I had turned a corner but it was six months before I could say that I was much better 

    Hang on in there. It’s a marathon not a sprint. He’ll get there. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • PS

    look out for masses of thick sticky mucous in his mouth. I spat a lot and it took a good six weeks before it settled down to be replaced with a dry mouth. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Thank yiu for the update as Daninsays it’s a marathon not s print some days he will be 2 steps forward and ine step back. 6 months is a good point to aim for. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • It sounds like your son is doing great, especially if he is managing without a feeding tube. To be honest, recovery doesn't start until 2-3 weeks after treatment ends. How long it takes varies - everyone is different. I managed a semi-normal Christmas dinner 6 weeks after finishing, and was hill walking after 3 months. 

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022.  Dec 2023 one year all clear. See my profile for longer story

  • Hi Jjblueeyes

    so good to hear that he is nearly at the end of treatment.  Same as what Dani said.  I slept on the sofa for much of the time.  It actually helped with the days to go faster. Literally the majority of the day. My tracker was recording 16-17 hour sleeps. I was vomiting if I tried to sip even water.  Those weeks can be really hard but everyone is different. He just needs to listen to his body and rest. He’s doing so well. 

    About 2 months post treatment I was beginning to go out and about socially.  But small steps and couldn’t eat or drink and tired very easily. So only with very close friends and family who understood.  I went on holiday for a week too.  I was bolus feeding.

    5 months post treatment I was back at work on a phased return.  6 months, back to full time and back to long hours. still suffering from fatigue and working on my eating.  And still recovering now at 11 months out.  As Hazel says it’s a marathon…. 


    you're son will get there. But it might be a bit rocky.  As you said he’s strong.  Wishing you and him well. 

  • I am now 4 weeks out of treatment and as the others have said I spent the first 3 asleep, almost around the clock.  The side effects of treatment continued to build during those weeks.  The 4th week was very much easier.  It is often 2 steps forward and one back at this stage.

    I ate right through to my last RT session.  That last week was really tough with the side effects coming fast and frequently unlike earlier weeks.  After that last session I was on liquid feed.  Tell him not to be scared to go onto liquid feeding as he needs the calories and his mouth/throat needs to recover without the stress of trying to eat.  This last week I have been taking soft foods alongside my pump feed. So immediate recovery can be relatively rapid if you help the body.  The longer term recovery will take time, but he will get back to a good quality of life.

    Peter
    See my profile for more details of my convoluted journey