Post treatment checkups

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Hi, my treatment for tonsil/lymph node cancer finished 12th May 2023. I was receiving regular checkups up until 12th May 2025 but since then I haven’t been called (9 months ago) Is this usual, as I thought you received checkups for 5 years?

  • I thought you received checkups for 5 years?

    You should do. What treatment did you have and when was your last scan? 
    A call to your CNS seems in order. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • PS

    I've just checked your past posts. It looks like you had a PET deliver NED after six weeks CRT. ( it would be useful if you put a brief history down in your profile) 

    Not being seen after two years is not normal so I’ll repeat. Phone your hospital. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I had 30 radiotherapy & 6 chemo. Had a scan about September 2023 that showed no sign of disease. I suppose I’m just a bit nervy as my sister has just been told she has lung cancer & it brought it all back and I thought shouldn’t they be keeping an eye on me still? X

  • Sorry to confuse. No I was being seen regularly for first 2 years post treatment but haven’t had any follow up for 9 months now. I’m in NI so I know things are done a little differently than in Uk. I think I’ll give them a ring and chase up. Thanks.

  • You should definitely have regular check-ups still even if they are not as regular as at the beginning. I finished my radiotherapy in October 2022 and I am seeing my ENT every 4 months. I would definitely call the hospital to get back on track with your appointments. 

    Let us know how you get on. 

    Fab1 

  • Hi I'm a head neck patient from NI and you definitely do get check ups for 5 years. I had tongue cancer and first year I was every month second year which I am now every two months and third year three months. And so on until five years. I would definitely contact your hospital. If you want to PM me feel free to do so x

  • I was on 3 monthly checks for 24 months, now on 6 monthly for the next 36 months...discharged from 3 monthly dental checks after 24 months.

    Michael

  • discharged from 3 monthly dental checks after 24 months.

    Were these at your hospital? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thankyou, I’ll contact hospital tomorrow.Blush

  • Yes...now on 6 monthly checks with my own dentist.

    Michael