Hi, my treatment for tonsil/lymph node cancer finished 12th May 2023. I was receiving regular checkups up until 12th May 2025 but since then I haven’t been called (9 months ago) Is this usual, as I thought you received checkups for 5 years?
I thought you received checkups for 5 years?
You should do. What treatment did you have and when was your last scan?
A call to your CNS seems in order.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
PS
I've just checked your past posts. It looks like you had a PET deliver NED after six weeks CRT. ( it would be useful if you put a brief history down in your profile)
Not being seen after two years is not normal so I’ll repeat. Phone your hospital.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I had 30 radiotherapy & 6 chemo. Had a scan about September 2023 that showed no sign of disease. I suppose I’m just a bit nervy as my sister has just been told she has lung cancer & it brought it all back and I thought shouldn’t they be keeping an eye on me still? X
You should definitely have regular check-ups still even if they are not as regular as at the beginning. I finished my radiotherapy in October 2022 and I am seeing my ENT every 4 months. I would definitely call the hospital to get back on track with your appointments.
Let us know how you get on.
Fab1
Hi I'm a head neck patient from NI and you definitely do get check ups for 5 years. I had tongue cancer and first year I was every month second year which I am now every two months and third year three months. And so on until five years. I would definitely contact your hospital. If you want to PM me feel free to do so x
discharged from 3 monthly dental checks after 24 months.
Were these at your hospital?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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