well that went rather well, after a bumpy start.. PEG decided to give off a pink discharge after cleaning 1st thing.. swiftly cleaned up and loosened a tad by radiology head.. a bit of a pressure sore going on, with it being too tight..managed to get Flamagel RT, after explaining my situation, so I can get that without going through GP now.. most helpful, I must admit.. they're working to arrange my start times to fit with my daughter giving me transport.. but a bit of a sore throat though, not helped by my wife deciding to make candles, to while away the time... the smell of resin is just killing me.. oh hum.. apart from that I feel good, in a good mood. ready to eat ham + cheese omelette and chips. plenty of drugs to take tomorrow and next 3 days, and some anti sickness, if I need them... so, onward and upward.. pleased with today, I must admit.
oh, and afterwards, on the way out, I had the opportunity to try something, the name of which escapes me now.. but you stick this cling film covered 'lollipop' on your tongue for 1 min, under your tongue for 1 min, then you place this disc like thing on along your jaw, and lips, all for 1 min.. it is hoped that it reduces the after effects... we shall see, and hopefully I'll get the name tomorrow..
Hi there everyone. What is this ‘lollipop’ and what is it supposed to do? Lizzie
It’ used to be called low level laser therapy. Its to reduce/prevent mucositis amongst other things
https://www.thorlaser.com/oralmucositis/
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good luck to you Loz, i'm not far behind you. How is the throat doing?
Irene
How is the throat doing?
Irene
so far so good.. TBH, I get more of a feeling from the PBM.. so hopefully it's doing its thing
Loz (62)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Day 3.. slept better.. waking up for loo trips, but all these fluids are making me pi$$ like a racehorse as it is.. lol
PEG still oozing pinky/brown crap from one side of the stoma/hole whatever you call it... area looks clean.. pink not red .. so will have words with the team tomorrow.. and will have words about how these extra meds are interacting with my antibiotics.. which for me are the priority, feeling crap at home is one thing, being admitted to hospital with an infection is another.. I'm sure they will guide me in the right direction..
oh yes.. finally got my Caphasol.. when do I need to start with that?
Loz (62)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
. finally got my Caphasol
Now. It’s prophylactic as well as reactive
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Start straightaway with the Caphosol. Use it several times a day.
. finally got my Caphasol
Do you have the tablets you mix with water or the two liquids ?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Do you have the tablets you mix with water or the two liquids ?
the 2 liquids
Loz (62)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
I had PBM but mine was a hand held that I placed on my cheeks, mouth and neck (i.e. did not put inside my mouth). I have done reasonably well throughout treatment and recovery. I did have some mucus issues but nothing compared with some on here, so wondering if this made the difference...
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007