1st one done..

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well that went rather well, after a bumpy start.. PEG decided to give off a pink discharge after cleaning 1st thing.. swiftly cleaned up and loosened a tad by radiology head.. a bit of a pressure sore going on, with it being too tight..managed to get Flamagel RT, after explaining my situation, so I can get that without going through GP now.. most helpful, I must admit.. they're working to arrange my start times to fit with my daughter giving me transport..  but a bit of a sore throat though, not helped by my wife deciding to make candles, to while away the time... the smell of resin is just killing me.. oh hum.. apart from that I feel good, in a good mood. ready to eat ham + cheese omelette and chips. plenty of drugs to take tomorrow and next 3 days, and some anti sickness, if I need them... so, onward and upward.. pleased with today, I must admit.

oh, and afterwards, on the way out, I had the opportunity to try something, the name of which escapes me now.. but you stick this cling film covered 'lollipop' on your tongue for 1 min, under your tongue for 1 min, then you place this disc like thing on along your jaw, and lips, all for 1 min.. it is hoped that it reduces the after effects... we shall see, and hopefully I'll get the name tomorrow.. 

  • Ask them for fluconazole

    there's a clash with my erythromycin , I believe.. 

    not on the oromorph yet.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • there's a clash with my erythromycin , I believe..

    Ah...sorry

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member in reply to Beau Chapeau

    Hi Loz

    Nystan? Bottle comes with 1ml pipette/dropper ....yes keep the solution in your mouth as long as possible....it worked for me....Oral thrush was another wee hurdle to overcome in the treatment race....nasty condition.

    Good luck 

    Peter

  • Oral thrush was another wee hurdle to overcome in the treatment race....nasty condition.

    yeah, nothing straight forward with this is there.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • just discovered that my dentist can prescribe gengigel mouthwash.. it seemed to work wonders on the ulcers that appeared on Sunday.. so giving that a go.. 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • just noticed that Nystan contains hydrochloric acid! is this going to destroy my teeth? 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • No

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • just a bit concerned considering the delicate state our mouths are in during treatment.. thanks.. Thumbsup

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • It’s not as if you’ll be holding it in your mouth for weeks. I would imagine the pH is much higher than a glass of orange juice and has much less HCl than a slice of raw onion. I’m sure you’ll be fine. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • just a bit concerned considering the delicate state our mouths are in during treatment.. thanks.

    This is what the ingredients are 

    Ethanol, flavours, glycerin, methyl parahydroxybenzoate (E218), pH adjusters (hydrochloric acid, sodium hydroxide), propyl parahydroxybenzoate (E216), sodium carboxymethylcellulose (E466), sodium phosphate, sucrose, water.

    You’ll notice that hydrochloric acid is actually labelled a PH adjuster ….. the manufacturers have mixed HCl ( acid) with Sodium Hydroxide ( alkali ) to adjust the acidity of the preparation. So I might imagine that the pH is near neutral. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge