Nice news

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Just thought I’d pop a couple of good news stories in here.

I posted (last week -1st week of January) that three years ago, at 63, I had the ‘Full Monty’ treatment for my tonsil cancer (surgery, dissection, chemoradiation) and three years on am doing well. I also mentioned at the outset that I had two friends who’d had oropharyngeal cancers about two years before me.

So to update, my (then) 67 year old neighbour’s tongue tumour was inoperable so he was given 6 weeks of chemoradiation for his treatment and had the all clear about 4 months ago. They told him he was cured.

Another friend (then 58) had a lump in his neck which he ignored for a full year. It was, not surprisingly, secondary lymph node SCC and by the time he presented the original tumour (base of tongue) had disappeared. (Apparently they do this sometimes.) However, he still had surgery on the suspected area followed by a separate neck dissection and then 6 weeks of RT (no chemo) and was also discharged as ‘cured’ last week. 

We each have various side effects, a little numbness, stiffness, dryness, etc but nothing debilitating or lifestyle limiting - just irritating at times.

With best wishes to you all. 

  • I was only teasing Ray Blush  I’m sure if you are dismissed after the magic 5 years, with NSD, you’re considered to be cured. 

  • Hooray that’s great news - thanks for sharing 

  • That's so heartening to hear - not one but three surviving-and-thriving stories! Thank you for sharing, and very best wishes

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story

  • They do!  I've lost mine twice.  I believe once is not common, but not unheard of, but to lose a tumour twice is just a the body being incredibly frivolous with the medics.  That's why the medics fight to see me Laughing  They think my immune system got the better both times.  Anyway the immune system lost it's battle this time around and I am now making best friends with photons and platinum Stuck out tongue winking eye

    Peter
    See my profile for more details of my convoluted journey
  • Yes, it was that immune system playing tricks again - in fact doing what it’s meant to do in the first place- ie get rid of it. I hope things are going as smoothly as possible with you Peter. My experience of UH Southampton has been very good. 

  • Yes they are very good and incredibly supportive and helpful.  Also that new Maggie's centre is heaven sent Slight smile

    Peter
    See my profile for more details of my convoluted journey