Nice news

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Just thought I’d pop a couple of good news stories in here.

I posted (last week -1st week of January) that three years ago, at 63, I had the ‘Full Monty’ treatment for my tonsil cancer (surgery, dissection, chemoradiation) and three years on am doing well. I also mentioned at the outset that I had two friends who’d had oropharyngeal cancers about two years before me.

So to update, my (then) 67 year old neighbour’s tongue tumour was inoperable so he was given 6 weeks of chemoradiation for his treatment and had the all clear about 4 months ago. They told him he was cured.

Another friend (then 58) had a lump in his neck which he ignored for a full year. It was, not surprisingly, secondary lymph node SCC and by the time he presented the original tumour (base of tongue) had disappeared. (Apparently they do this sometimes.) However, he still had surgery on the suspected area followed by a separate neck dissection and then 6 weeks of RT (no chemo) and was also discharged as ‘cured’ last week. 

We each have various side effects, a little numbness, stiffness, dryness, etc but nothing debilitating or lifestyle limiting - just irritating at times.

With best wishes to you all. 

  • Hi Mark

    Thanks for sharing such positive stories. It really does show that head and neck cancers are curable and although the journey can be tough there are really good outcomes.

    Glad to hear that you are doing so well also.

    Best wishes

    Lyn

    Sophie66

  • Another friend (63) had a lump in his neck which he ignored for a full year. It was of course secondary lymph node SCC and by the time he presented the original tumour (base of tongue) had disappeared. (Apparently they do this sometimes.) However, he still had surgery including a neck dissection on the suspected area followed by 6 weeks of RT (no chemo) and was also discharged as ‘cured’ last week. 

    Hi Mark. I didn’t know about the disappearance. Thanks for that

    I I must say that if I had SCC in a lymph node but they couldn’t find the primary I’d have the Full Monty too. 
    I don’t know how Peter has managed to stay sane for four years of frequent monitoring only to have CRT anyway. 
    Your good news is so encouraging, 

    I am counting the days to January 23 when I can be in the cured stats

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Mark

    T2N1M0 tonsil cancer.... finished CRT June 2023

    Treatment was tough, very challenging at times....but there is light at the end of the tunnel as you have highlighted.

    Life improves from day to day ...sometimes with a little stumble here and there....but we are not running a sprint.

    Best of luck to you...and friends.

    Peter

  • ‘Hi Mark. I didn’t know about the disappearance. Thanks for that.’

    Well, that’s what he told me anyway Danni. All the best for the 23rd Thumbsup

  • Hi Dani. Are we considered cured after 5 years? I meant to ask what my status was, at my last check up, but forgot to ask.

    Ray.

  • That’s one hell of a big forget Ray Laughing

  •  Hi Ray

    After bowel cancer surgery I was monitored for 5 years...no sign of anything untoward...then discharged from follow up scans/appointments.

    Peter.

  • Hi Dani. Are we considered cured after 5 years? I meant to ask what my status was, at my last check up, but forgot to ask.

    Well we are excused from routine review and appear on government stats as surviving 5 years. I do r think anybody with any cancer is cured. My Maxfac surgeon says I am.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • That’s one hell of a big forget Ray

    We do stuff like that though don’t we? I’m an ex smoker though gave up nearly twenty years ago. I never asked my HPV status fearing the worst and putting it at the back of my mind. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Yes I agree it was a bit. It was my very last checkup. What I meant to ask was am I classed as cured or in remission?