Long overdue update

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Hi all

Looks like there are still folks on here who may remember me. Just passed 3 years since my diagnosis was confirmed and next week marks 2 years 8 months since treatment finished.

I haven't been on here for a few months, Dad dying of pancreatic cancer in May has knocked me far more than I realised,. 

My cancer is still in remission, I mostly eat 'normally' now, or at least we have a routine. I'm fine eating out but really anxious when other people cook for me, textures and acidity are my fussy aspects. I can manage a good few drinks too, just not as much red wine and no neat spirits. In fact  for first time in 3 years i am having to watch what i eat to avoid the old weight gain. Saliva ok, I can manage to pop out for a couple of hours without the ever present water, so long as I don't talk too much. Check up in December was all good, if same in April moving me to 6 months. I still massage my neck a couple of times a week and stretch jaw and vocal chords most days. 

So, my 50th was a bit messed up, I spent it speeding up to Leeds to say goodbye to Dad. We eventually had the party I'd planned during treatment in September. I regularly play my birthday playlist i started compiling back in 2021. Friends and family mostly respected my wish for no presents, we raised a respectable sum. I spent the evening dancing (managed to get a steroid injection the week before for my rheumatism!). 

Our grandson arrived in July, along with 2 great-nephews and another 10 babies born to friends. So, 2023 has very much been about the circle of life. It is a real pleasure watching them grow up. Pops started school in September, which makes me wonder where that time has gone! 

My dog walks and time in the open air and trees remain invaluable. Pip has been amazing company, the gentlest of souls and the daily greeting when I get home is enough to live for in itself! 

No matter where you are in your treatment, hang in there. The fear is real, but not insurmountable, especially not with the support available here. Treatment is brutal, but fairly short and highly effective. Recovery can be slow, but use the time to re-set yourself, then live your life to the fullest. Small things become immensely beautiful once you've walked the path we have. 

Warmest wishes to you all for 2024. X 

Gill

Party with my grandchildren.

Pip walks through the seasons

  • Hi Gill, I remember you. It's good to see how well you are doing, and living life again, we all have to get used to the new normal, which you seem to be doing well. Posts like this are very inspiring, for others who have just been diagnosed, having treatment or in recovery. On a sad note, sorry to hear about the death of your dad. Best wishes for the New year.

    Ray.

  • Hi Gill so sorry to hear about your dad hugs.

    Great update for others who sadly are to follow your footsteps. Those dark days of diagnosis  I can still recall you locking yourself in the cupboard at school. Fab news re the babies make sure they all get the HPV vaccine at 13 James our grandson is 13 he gets his in January he is telling all his school  friends why it’s needed. 
    keep living the dream I know I am. 
    woof to pip as well

    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Warmest wishes to you all for 2024

    Same to you Gill. So sorry about your dad 

    Gill’s blog is here  

    it’s really worth a read 

    community.macmillan.org.uk/.../not-this-time

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • a truly informative and inspiring blog.. it certainly answered a couple of questions that I keep wondering about.. wishing a wonderful New Year to Gill, and everyone here.. all the best.

    Loz (61)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Great to hear from you Gill and delighted you're doing so well! There's a lot of life to be had after treatment for the vast majority of us fortunately, glad you're spending the time wellThumbsupxx

    My grandchildren (ten, count 'em) Christmas was postponed due to number three daughter being poorly, now happening Sunday 7th; going to be manic!Joy

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Hi Gill.  Lovely to hear from you.  You always write so well.  I am a little behind you but doing well.  Few mouth issues but on the whole pretty good.  Just had our 3 rd grandchild born on Xmas Eve. Wishing you and everyone on here all the best for the coming year xx

  • Hi Mike nice to see you posting again, Have a good day on the 7th. Best wishes for the New Year.

  • Hi Gill

    It is so good to hear that you are doing so well and congratulations on the birth of your grandson. It is such a blessing being in the lives of grandchildren and watching them grow. You are so right about enjoying the small things becoming so beautiful. We do tend to take our lives for granted and not appreciate it until something like a cancer diagnosis makes us wake up and really start to smell the roses.

    Sending you my very best wishes for 2024 and many more happy years to come.

    Lyn

    Sophie66

  • Hi Ray

    Hope you are keeping well. Thanks for all your encouragement. 

    Take care, Gill 

  • Hi Hazel,

    Hope you're well. Good to see you still helping everyone on here. I keep banging the drum about the vaccine and the school nurse has pictures of my blistered mouth for anyone wavering. 

    Hugs back.

    Take care, Gill x