Hi All. Just a timely reminder us who have had radiotherapy will need thyroid blood tests yearly I also have cholesterol checked at same time.
. Mines today I have a yearly reminder on my phone. Do thought idea opportunity to remind all of us. Onwards and upwards, where’ve you are in treatment.
hugs
Hazel
Hi Brian. It’s the nurses who do the cholesterol bloods, I was discharged July this year and my consultant when she wrote to go added that my thyroid bloods would need doing annually. Am sure if you either ti g it go in see reception and ask. The thyroid one up to 5 year point we’re always done at hospital.
good luck
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
You shouldn’t need to see your GP. Just fill out an E Consult and tell them about your cancer. The practice nurse will do your bloods and you’ll just get a report back on the phone
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Hi We’re you on a trial ? As I know the pet neck 2 trial is a pet ct scan at end of year one. You don’t see a consultant unless you’ve an issue then they will see you within 2 weeks. I haven’t had a pet ct scan since my scan week 18.
As for thyroid that’s checked annually by hospital now discharged so g o does thyroid and cholesterol.
Hope you’re well
Hszel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
Thanks Hazel , must enquire at next three month review.
thyroid that’s checked annually by hospital
Mine never was. It was never mentioned.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Wasn’t it thought it was. It was mentioned by Dr Sen ti get it checked annually xx
H x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
No it’s daft. I had to work that one out myself. I think we should all be told on discharge.
When I asked about carotid damage I was told to keep my cholesterol and bp down to protect myself from atheroma. The idea of a Doppler was mine. I wouldn’t mind checking them out anyway.
It’s not simple though. The NHS doesn’t normally check unless you’ve had symptoms ( ie a stroke or a TIA)
It would be useful to know in advance how much risk I’m at.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
Thank you Hazel, this is really useful as my pre-treatment scan showed thyroid nodules and my one- year review is coming up - I'll ask about thyroid function test. I'll also ask about carotid atherosclerosis which I see is a common late effect.
How you're doing well!
Catriona
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Dec 2023 one year all clear. See my profile for longer story
Hi Catriona. Yes I’m very well thank you. Had my bloods done yesterday just waiting for results p,next week.
wow a year time flies.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
Hi Hazel, I am back on the forum after a long absence precisely because of thyroid issues my husband is having. He has never been offered a regular thyroid test after surgery and radiotherapy for tongue cancer. 6 months ago a routine blood test detected cholesterol issues which seem to be due to his thyroid more or less stopping working. He is now taking thyroid supplements to address the cholesterol, but despite him pointing out that radiotherapy may have damaged his thyroid no-one at the GP is open to the idea that he should be checked over by the H&N specialists or referred back to the H&N cancer clinic. Does anyone on here know whether he ought to be referred? I am a bit concerned about other symptoms he is developing - such as sore throat - but don't want to worry him unnecessarily by suggesting going back to an environment which he finds traumatic.
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