Good morning fellow warriors. I hope you are all doing as well as can be expected.
Something of a brief update. I have now completed 5 fortnightly sessions of immunotherapy (nivolumab) and off to see the wizard (oncologist) this afternoon. I have not suffered too badly at all with any side effects and I hope to find out today when they might scan to see if any affect on the now incurable tumours etc. Growth has caused mouth / jaw to contract somewhat so diet moved largely back to liquid/very soft but managing ok to well on that without tube for now.
So whilst I am now palliative I remain positive and hopeful that nivo and / or whatever next defence might be, will buy me/us some more time. I think it's now that I have accepted living with cancer as opposed to beating cancer and it's not too bad .... did I really just type that?!:
Stay warm, dry and rested if you can and don't let the b!£$^$!&D grind you down!
Hi Gene Good luck with wizard oncologist and hopefully he can give you positive news.
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 5 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
Hi Gene. Thanks for the update.
Thankfully your side effects are minimal which is really encouraging
Long may you continue to not let b!£$^$!&D grind you down
Good luck with your wizard xx
Base of tongue cancer. Out of radiotherapy January 2019
Blog about my cancer.
Hi Gene, I really hope the wizard can give you loads more time.
Thank you for the update Gene, and good on you for your attitude. Sending love & luck,
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Feb 2023 PET scan clear and I feel almost back to normal. See my profile for more detail.
Good to hear from you Gene.