Scar tissue?

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Hi Everyone,

Meant to add this to my first post earlier!!

Those of us who had back of tongue cancer treatment,my question is ,does it leave scar tissue in the areas that were subjected to RT like the  throat and tongue ? If so can this sometimes feel as though it's tightening up ,like a stiff feeling in back of tongue and throat ?  I feel this from time to time ,and it can last a few days . ?

  • Yes for me it did. I have a band of white scar tissue running the length of my palatoglossal arch on the treatment side  usually it causes me no problems but sometimes it gets really tight and painful… usually when I forget my trismus exercises 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dani ,

    I'm afraid you stumped me with science talk , and what are trismus exercises ?

    Sorry for appearing dim !

  • Ok sorry. JoyJoy
    scar tissue runs from the top of my soft palate to the back of my tongue. A thin white band. 
    Trismus is the inability to open your mouth the prescribed width which is your first three fingers of your non dominant hand( I’m right handed, so my left) held between your teeth. 
    Trismus to some degree is common after throat RT which is what we get exercises to open our mouths as wide as we can. I still do mine 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Sorry for appearing dim !

    And you’re not dim. Im just used to using the anatomical terms like our teams do. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you Dani Blush 

  • Hi Like  Dani I’ve the white line mines where my tonsil was and religiously every day I do my jaw and swallow exercises. You should have been given them prior to treatment. I do mine without realising it’s as natural as brushing my teeth now. 
    the swallow is do a hard swallow and the jar ones open mouth as wide as you can without ur being painful . As Dani says 3 fingers should fit vertically 

    hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/