Keep going!

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Hello. After surgery & 6 weeks of chemoradiiation for tonsil & lymph node hpv 16 positive I was totally reliant on my PEG for several weeks. I hated the whole PEG experience & was determined to do all I could to eat again & have it removed. 
Today is the 1 year anniversary of my PEG removal. I have worked hard to get myself to a good place & am feeling as ‘normal’ as I ever could have hoped to be after such a traumatic journey. I’m so grateful to my PEG for keeping me alive & feel proud of all that my scar represents.

For anyone at the beginning of this journey  - dig deep, be kind to yourself, keep the faith & embrace the PEG.. Eating WILL get easier!

This was dinner tonight - 

  • Great post. Pizza and chips is worth fighting for. You can't get that down a PEG 

    My Bêtes Noir were Avocado and Baileys. I used to love both. It took me a year to enjoy an avocado/mozzarella/tomato salad and two years to taste a Baileys than wasn't reminiscent of diesel. Food gradually became a pleasure and it will to all of you just starting out

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Haven’t tried alcohol yet!

  • I could do an ale pretty quickly. Three months. You could try a Guiness 

    Wine was tricky for a couple of years. Don’t bother with it these days. Prefer a decent beer. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Blod, a great post, it shows those coming along behind us, that this can be done, and we can feel normal again. I had a RIG which was a lifesaver for me, I couldn't eat after 3 weeks of treatment. I too am grateful to my RIG, I call my scar, my bullet hole. It's great to see you doing so well.

    Ray. 

  • Thanks for the encouragement Blod! I'm on the opposite end of this process only having completed 4/35 RT and 1/7 chemo for both taonsils, soft palate and giant lymph. Found my appetite and tastes have changed which saddens me as eating together with husband and friends always used to be a pleasure. I'm not nearly at needing an NG or G tube yet, but am increasingly willing if I must. Met a guy in RT who remimded me of Colonel Sanders ( lke the guy from the chicken franchise) who was completing 33/35 who was doing pretty well and had avoided any tubes, despite a sort throat. His cancer may have been diffeerent and he had no chemo as he was aged 78 at start of treatment and opted not to have it. Anyway, it put me in a good mood to see him so cheerful and doing well despite a very very quiet voice... One day I too hope to eat a meal like you show in your photo!

    Thanks!!