Is it phlegm or gunk from my treatment

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I’m using my nebuliser but it doesn’t seem to be helping much if at all and it is preventing me getting food down.  I feel that if I could just get it all up then I would be able to eat more. 
I have had a bad couple of weeks with an infection in my peg site plus 5 days of diarrhoea and had antibiotics , I wasn’t sleeping or eating and have ended up with anxiety which has knocked me for six I have never had it before and I thought I was losing my mind.  
 I was at the hospital last week for my visit with my ENT specialist, had the camera up my nose and down my throat and he said everything looked good. I am now waiting for my CT scan appointment then will see my oncologist to get the results.  
The dry mouth is still very bad but I am rinsing my mouth regularly and I have tried everything that people have recommended to me so I am just plodding on   
 I am now 10 weeks post treatment and just getting by day to day. So sorry for the whining but I’m sure I will get through it as you have all done. Thank you for listening again 

Love Lillian x

  • Hi Lilian

    Yes I tried a nebuliser and it didn't do a lot for me. I have also tried a huidifier in the bedroom - same result! 

    No It's OK to be a bit down. My treatment finished 9 months ago and I still have a very dry mouth and my mouth tasted like a camel's armpit. I found that rinsing with fizzy water helped to get rid of the phlegmy gunk. I was PEG fed till quite recently, but I still feel when I eat soup that there is something between the back of my tongue that needs to come back up. I do manage to bring it up (Sorry for being graphic) and sometimes I do have some phlegm. So rest assured you are not alone. I have said in other posts I have made - the after effects are worse than the treatment - especially psychologically. Try to stay strong - I also suffer from anxiety and all this stuff does run you down - Just try to take one day at a time - I know its hard - but keep going - you have done really well so far 

    Steve x 

  • Thank you for that message Steve, it has made me feel not alone.  I am doing my best to keep my chin up but it has been difficult, I don’t know what I would have done without my family they have been brilliant helping me through it all. 
    Lillian 

  • I also need to thank everyone else on this site who has helped me through it all, I really don’t know what I would have done without them all 

    Lillian

  • The sticky mucous is from treatment. The salivary glands produce two sorts of secretions. Mucous and water with enzymes in it. The submandibular glands produce a mixture for background lubrication, the parotids more watery. Your submandibular are the ones knackered by radiation and parotids,  often damaged on one side, usually secrete in response to food. The minor salivary glands dotted around are mucous producing and usually intact. So after RT you end up with functioning glands producing largely mucous. Hence the sticky mouth. They do recover a little so it’s just patience. Honestly it does get better. It was a year before I was really happy with being able to eat without thinking about it. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you for that Dani although I didn’t understand most of it lol, but I think I got the gist of it. Every little helps though, Lillian x

  • Lilian. You are doing really well. You realise it’s a plod but plodding will get there. 
    I like to throw in the odd science lesson Joy

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Do take medication for your anxiety Steve? I am really struggling with it, just as I wa starting to eat a little bit more. 
    Lillian x

  • Hi Lilian you’re doing really well. It’s early days remember the treatment is pretty brutal but needs to be to get rid of the cancer. Sticky mouth sticks around a while. I never thought it would go but it did only ti he replaced by dry mouth but we have tips for that if it happens. Just be kind to yourself you’ve come a long way. 
    hugs Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • My husband is suffering terrible with this very thick phlegm it’s like glue every few minutes coughing it up . We are now using humidifier hope it helps x

  • Well to top it all it now seems I have lymphoedema in my throat. 
    Lillian x