Weight loss

Hi Lotty. Yes I lost nothing during treatment then lost a stone. I had no appetite for six months. None at all. When I was pump fed I managed on 1000 calories a day. Never needed nor could stomach the 2500 they kept on at me about. 

Hi Dani

Thanks for your reply. Its stressed me out a bit which doesn't help. Thinking why suddenly have I lost it when I've upped the intake, doesn't make sense.  Im seeing the dietician again this week, so maybe she'll offer me something else to take. 

Tracy

Hi Tracy

If the Esures are doing the job then keep on them for as long as you need them.  I was taking them for months after treatment - slowly reducing the number as my eating took over.  Even a year later I would still have the occasional one with me if I were going out and unsure of finding something suitable to eat.  At one stage I went onto pump feeding using the big bags of food.  I found those much more difficult to keep down than the Fortisips I was on.  I could pump in the Fortisips quickly but the bags needed a very slow trickle to stay down...

Fatigue is a problem for most of us for a few months after treatment, but I doubt that is related to weight loss.

Before treatment I put on weight and managed to keep it on during treatment.  Post treatment I lost around 10kg, but that was planned to get me back to my normal weight.  Even so I was probably still piling in around 3000 calories per day.  See if you can speak to your dietitian when you go in for your appointment.

Fingers crossed the nodule is of no concern.  Hugs

Lotty said:

follow up on a chest scan for a nodule they found originally. 

I had two. Old age and a previous infection. They are very common. 

I lost 4 stone due to issues with the Chemoradiotherapy, luckily I could afford to as I was already overweight, the Ensure 2cal caused acid reflux so my dietitian changed brand which helped a lot, overnight slow PEG feeding also made a big difference...I got started on solid food and supplented it with Ensure orally that was the real start of taste and appetite recovery.... Guinness alcohol free was one thing I could tolerate well...and it got a few calories in.

Yes im finding the more ensure I have the worse my reflux is becoming. Did you lose weight after treatment finished also.  

Hi aLotty yes like Dani I lost very little weight during treatment was conscious of not loosing weight. But once we stopped seeing medical staff daily and left to our own devices I too,lost 7 lens quite quickly. I was able to swallow from weeks 3 so with permission  I took my ng tube out and swallowed 6 ensures a day which gave me 1800:calories but soon found out I needed 2500:to maintain weight so set about poaching eggs adding creams Philly soft cheese Forn15  months my weight remained stable didn’t out any in didn’t loose any. But atb15 months it started to climb back uo so out went the cream cakes and trifles. Although in first few years a bad days eating I coukd loose 2 lbs overnight. 

Hi a lot of us have are having acid reflux I am taking omeprazole and many others are on ppi. I didn’t need them prior to treatment. 

worth asking gp or consultant  

Hazelmxx

Yes, I was attending my last week of Chemo and radiotherapy when the radiotherapy team became concerned about my weight.. they had me admitted straight to the cancer ward to stabilise my weight...I spent a fortnight in the ward being assessed and tried with different PEG feeds... fortunately they managed to find one that I could tolerate.

Hi Hazel thanks for replying .I was on lanzaprosole beforehand but stopped when swallowing became a problem. I have silent reflux.  To be honest I've felt fine upto 2 weeks ago  , then started with reflux again. The hospital gave me orodispersable lanzaprosole but the little beads played havoc with my ulcers, it was too painful to take.  I've just started taking them again about  a week ago as my ulcers have healed a lot. 

But because I've upped the amount im taking as feed its quite bad.

My weight has been stable  for about the last 10 weeks , it just worried me . 

Tracy x