I year post treatment

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Hi all

So today is my 1 year post treatment anniversary!! A whole year since I rang the bell. That day feels like a lifetime ago now.  Recovery was slow & distressing in those early weeks. Depression took me to a dark lonely place. The reassurance from the medical team that ‘it gets better after a couple of weeks’ turned out to be total  fiction. I couldn’t speak, couldn’t eat & couldn’t see how life would ever be ‘normal’ again. I wanted to close my eyes & disappear. At this point I contacted Macmillan for counselling & am so grateful for the kindness, patience & space to grieve that part of myself I felt I had lost. 
I also found & continue to find great solace in this forum. No question is too small, no worry is too silly. A huge thank you to everyone who has ever reached out to reassure & help me. 
So today I will eat cake, drink a latte ( I managed my 1st one last week!!) & count my many blessings. Recovery continues but I feel that all the pieces of myself are now back. A friend summed it up beautifully yesterday. She said, ‘ I can see you are back. There is glitter in your eyes again.’ 

  • Hi Blod

    Macmillan counselling was good for me too. Every little ache or pain I was convinced my cancer had returned, to the point I was anxious all the time. The sessions helped me enormously, as has this forum, never judged or made to feel a nuisance, it was and still is my saviour. I don’t reply often as some of the questions I cannot answer, but read them and feel grateful that others can and do give great advice and support to people. Glad your friend can see the glitter in your eyes onwards and upwards :)

  • What a lovely post Sian. 
    The clinicians tell us we will get better two weeks out. We don’t but we do get there in the end. I post this ad nauseam but my oncologist told me from the outset as we went through my consent form that my cancer would take a year out of my life but that he would cure me. He was fairly accurate with the first and spit on with the second. 
    After a year there were still many bumps in the road to come but they got lower and lower. 
    hugs xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Blod wonderful news enjoy your latte,I can now do black coffee so progress will continue. Yesterday I cycled z75 km in 30 degree heat never batted an eyelid. Way back when I never thought I would ride my bike. 

    hugs Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Well done Blod, enjoy your cake and latte.

  • Hi Hazel. Flying our bikes over to Majorca in a couple of weeks. Can’t wait for the warmth and miles of peaceful cycling :) 

  • Hi Debbie Fabulous news. We’ve had 4 weeks so far ideal biking  weather. As you say peaceful cycling. Enjoy look forward to photos. Just look how far you’ve come. Onwards and upwards. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Congratulations! That is a great milestone and it’s really good to hear that the glitter is once more back in your eyes!  Remember that a little progress each day adds up to big results Thumbsup

  • Hi Blod, your post resonated with me this morning. It was was one year ago today I went to the doctor with a tiny lump in my neck. I was 59 , excellent health and naively assumed I’d got a fatty lump and was wasting my doctor’s time!! It lead to a catastrophic whirlwind of scans and diagnosis of base of tongue cancer. Treatment started 11th July and ended on the 26th August. Like you,  I was reassured that things would get better a few weeks after treatment ended. I also plummeted months after treatment and following advice on this forum sought counselling via macmillan which helped enormously. I’m six months post treatment now and my taste is finally coming back. My hair is growing back, the saliva glands are kicking in and although I’m 3 stone lighter I’m filling out in the right places. I keep an eye on the forum , Dani and Hazel helped me one day when I was very low (thank you ladies) . Macmillan referred me for reflexology and that seemed to help with both saliva and appetite. It’s a long , dark emotional road. I’m just laying in bed watching the sun, drinking coffee and looking back. Like I say, your post has made reflect on my own anniversary , wishing you and everybody on this forum well, it does get better , as everybody says, one day at a time. Debbie x

  • Dani and Hazel helped me one day when I was very low (thank you ladies)

    Oh I'm so pleased you have turned a real corner. You and I are watching the same sun with a coffee in our hands. Sun with face

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Morning Debbie. How time flies I’m watching the sun but a tad further south. Yes I’m away again. One life just live it. We mostly all get there just takes time. I too wish the consultants wouldn’t say 2-3 weeks it’s my mission to spread the word it’s often longer. 
    hope  you enjoyed your coffee 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/