Taste

Hi Lizzie. What a wonderfully encouraging post

I was told to expect improvements up to 2 years. However while that’s right for most of those I’m still getting them four years later. That includes saliva. I gave up my water bottle entirely by two years. So best foot forward. You still have time. 

Thanks Dani.  That’s what I wanted to hear really. My consultant says improvements up to 21/2 years. But I do feel improvements have slowed down I suppose and just wanted a bit of hope (silly really) x

Not silly. I don’t know why consultants are so prescriptive. Yes the vast majority of improvements occur in the first year but some minor improvements are really significant. 
Hang on Lizzie. By the time you catch me up you’ll be almost as you were. Xx

Hi Lizzie . Well done I’m now 4.5 years and still improving. My water bottle is no longer an extension of my arm. I still drink water but no where near as much as I did.  Saliva many hours can now go by without me thinking my mouth is dry. I never thought that.  Nighttime I still use 1/2 a xyimelts and think that will be forever. I can manage without one but everything sticks so to avoid that xyimelts are my friend. I’m envious of you using mustard I can’t use it at all nothing remotely spicy not good with vinegar either but has we say we are all different. Chocolate is ok I much prefer over  70% cocoa the days of cadburys have gone for me I get burning tongue. Glad yiu had a fab Christmas and uplifting for others to read in the future.

hugs Hazel xx

Hi Hazel.  Yes, chocolate has changed for me also.  Which is very annoying!!!!  I do sometimes force it down but find it’s just not so good.  I too prefer darker choc.  Just tastes better.  I am lucky with spicy things snd mustard etc. I do have vinegar but it just dries my mouth right out so not worth it really. Sending all best wishes.  Lizzie

Lizzie.123 said:

 Yes, chocolate has changed for me also.  

Unfortunately I can eat any chocolate.

Hi Lizzie and thank you for your encouraging  post. Reading some of the comments on this forum seems to suggest that recovery of taste and texture following treatment is quite varied and does take time. I am 17 months post RT/CT  and am Ok with most things and do prefer a bit of spice in my food. Weirdly, I still struggle with the taste of ice cream and still await the day when I can tolerate a glass of red wine

- John

Hi john.  I can’t really drink wine.  I can drink rose and fizzy water which I like.  I also find beer perfectly good and (luckily) a glass of champagne.  It doesn’t taste quite right yet but I still have it!   Best wishes. Lizzie

Hi Lizzi,

great post as i am interested to how and what people can have/not.

i am only 5 months after RT/CT and i can taste everything, eating all, but still burning having chilli or peppery food…

i hope this will get better, and i am having acupuncture for my dry mouth, and finding very helpful.

I try beer, wine, Prosecco and all ok…. Wine too, but not strong alcohol

Good luck with all, and hopefully we will get there x

love, Marta 

Hi Marta.  You are doing really well.  I was not as good as you at your stage.  Funnily enough I tried a whisky over Xmas and it tasted perfect!  Lizzie