So, after 2 weeks back in hospital for acute dehydration, dangerously low levels of potassium and magnesium and to have RIG refitted (that's another story)! I received an appointment for MRI scan on my liver. No warning, totally out of the blue ever since I have been totally freaking out! I have had a scan in July they saw something on the liver but didn't feel it needed close examination. Now they tell me because I've cancer treatment and obviously a diagnosis I have to have this done. I completed RT and Chemo at the start of October. I am so frightened and its making everything else so much worse Has anybody else had experience of this happening. Any advice?
My eating is also causing me a massive issue. I still cannot bring myself to eat. It's a mixture of uncomfortable throat (I have throat cancer), lack of taste, texture and a real reluctance to eat plus I simply do not have an appetite. After even minimal eating (say just a small amount of soup) I feel so sick and that puts me off trying next time. I feel very low at the moment because I do not feel as though anything is getting better. I am under the SALT team, and I am paying to see a Kinesiologist plus Counselling with MacMillan. I am trying to do do all of the right things. I have this liver MRI on the 5th of December and then the 3-month Head and Neck MRI on the 26th of December! I can't bear MRI scans, but I do have a very good Macmillan nurse and she is helping me with that.!!!!!! Id saet Xmas as a real milestone and now I am not going to achieve what I was hoping to plus its fast approaching the 1st anniversary of my mums death so all in all not the best of times!
Thank you.
Hi Alfie
Sorry that you are going through a really tough time at the moment. I am glad to hear that you are having counselling as it sounds as though things are really getting on top of you at the moment.
I am sure that the liver scan is just a precaution and it doesn’t necessarily mean that something sinister is happening. You often hear of people having scans that show up nothing to worry about but it is a good idea to have it done to be on the safe side. I will have my fingers crossed for you that this is the case and then you can put it behind you and get on with your recovery.
Recovery from chemo and radiotherapy can take a while and it is only October since you finished your treatment. Side effects can last for a while so hold on as things will improve.
We all think that once our treatment is over we should immediately feel better but unfortunately that is not true. It is a slow process but in another few months you will be amazed at the difference and how much better you feel. Take it a day at a time and you will get there.
Keep trying with the eating. Just a couple of mouthfuls is fine and you will gradually build on that.
People often rely on their NG or RIG tube for a few weeks after they have finished treatment.
You can do this. We are all here to give you support.
Lyn
xx
Sophie66
Hi. First if all deep breath .
give this a read it’s helped lots of people
As for your liver scan as Lyn says there’s quite a few on here who have had scans after treatment has finished, as precautionary.The main cancer was your head and neck cancer which has been dealt with.It’s extremely rare for our tyoe of cancers to fail after treatment so try to remain; positive.As for eating you may not think so but 8 weeks is really early in the scheme of things , we all recover differently.It’s a marathon not a sprint as I always say Good you are having counselling and that they are helping with your fear if the mri. This Christmas was always going to be a big aim but next Christmas hope you can pop back in here and tell us how you are feeling . Treatment was hard but you’ve done it, just try to focus on you thus next month .since my diagnosis in 2018 I’ve developed my own mantra I don’t worry about anything I have no control over I used ti be a big worrier but nit any more.. I’ve decided life’s to short to stress over things I have no control over.
This download might help with food.
www.yumpu.com/.../cookbook-by-andrew-gaylor-head-and-neck-cancer-survivor-2022
Hugs Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thank you for your advice it's makes sense. It's just such a seemingly relentless journey. X
Hi ut is the treatment is only a small part if it m recovery is equally as important. As i be said before it’s a marathon not a sprint ..but stick with it it’s worth it in the end. Please let us know how yiu get on.
i with hospital double check the 26 th date re mri scan just to be sure with it being Boxing Day.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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