Dry Mouth (Again, Sorry)

Thanks Again Dani,

I have just been reading about the different tests - VF & FEES - on the Macmillan main site and I suppose that these are the tests that you speak of.

Does CNS mean Cancer Nursing Support?

Bob

Clinical nurse specialist. She/he is your contact with the team. Sometimes they are Macmillan nurses but not always You should have their telephone number somewhere. If not ring your oncologists secretary and get their number

Yes, I have sent an email to them. Thanks Dani 

Bawbee said:

VF & FEES

Yes. those are the ones. There are quite a few people here who have had them done. You could start a new thread asking if anybody has 

Good luck. Let me know how you get on

Beesuit said:

Good luck. Let me know how you get on

At the Dental Hospital today, I was told that I had been referred to their internal Oral Medicine team for their assessment and for them to discuss with the Oncology Team at Ninewells Hospital.

I also received a reply from my Macmillan CNS this afternoon stating that she would discuss this with the SLT if I let them know the problems that I am encountering.

Bob

Well it’s a step forward. Hope they get their  collective finger out. 

Hi Bob Hoping they   don’t hang around let us know how you get on please. 
Hazel x

Hi Bob

I think the technical/clinical elements of your discussion are outside any experience I have and what I have listed below you could be well past this point already.

You may well know all of these, below are a few rinses that were suggested to me which have proved to be so useful.

I have used them all at some point with certain ones forming a regular part of my oral hygiene. Most of these you can mix up in larger quantities so you have some on hand when you need it.

Salt and Bi Carb Soda Rinse Recipes

Bi Carb soda and Salt Mouth Rinse

1/4 teaspoon bi carb soda

1/8 teaspoon salt

1 cup of warm water

Mix well until salt dissolves. Rinse your mouth gently, being careful not to swallow the mixture. Follow this with a plain water rinse to clean out any remaining salt or soda. 

Big carb Soda Mouth Rinse:

A Good Rinse for Before You Eat

1 teaspoon bi carb soda

1 cup of warm water

Mix well to dissolve the baking soda. This is a good rinse to use before and after a meal because it may soothe any mucositispain you have, making it easier for you to eat well. Swish and spit, but don't swallow this mixture.

Saltwater Mouth Rinse

1/4 teaspoon salt

1 cup of warm water

Mix well to dissolve the salt. This saltwater rinse is close to the natural chemistry of your own saliva. This may make mouth sores feel better. Rinse well with plain water to remove excess salt.

Salt and Soda Rinse for Gummy Mouth

Some chemotherapy drugs can increase the acidity in your mouth, leading to thick saliva that can be very annoying. This rinse works well for "gummy mouth."

1/2 teaspoon salt

2 tablespoons bi carb soda

4 cups of warm water

This rinse will help to neutralize the acid in your mouth and will help dissolve or loosen thick, gummy saliva. Don't drink it, just rinse and spit it out.

i know most of these say mix with warm water but if you mix up batches rinsing when cool works very well.

The mild salt water mouth wash I use quite a bit as it helps to generate saliva to make eating easier as well as keeping up the oral hygiene.. one top tip is if you mix up a batch in a water bottle the same as a normal water bottle you want to drink from make sure you mark the one with the salt solution in as you don’t want to gulp from the wrong one when thirsty. Got the T-shirt on that one and it is best avoided.

Regards

T

Hi am 4 months in front of you eating still a bit of a nightmare go for foods with sauces it the only way forget ever having a bacon roll again 

But we beat cancer chin up sending you best wishes ️