Hi - quick update on "late" side effects and just to prove we are all different and our bodies deal with things in their own way and in their own time!!.
The redness on my neck had disappeared by end of wk1 recovery - I'd had no peeling or blisters, just a 'sunburn'. I thought I'd got off very lightly. But by the end of last week (wk4 recovery) I had a rash on my collarbone, which spread up my neck - very itchy and small blisters by Saturday! My mouth was very sore and I woke with very swollen lips for 3 days (swelling subsided within 1 hr) I got it checked by a Dr in hospital on Friday and also saw my head & neck nurse on Monday - both confirmed it was a normal part of recovery and I'd just peaked later.
Continuing with Ibuprofen and other pain meds for swelling and moth soreness, Nystan for oral thrush, gargling with salt water, propolis, difflam... Plus Cetreban cream, which worked quickly on my neck. I took Clarytin (for allergies) for a few days for the huge lips and it had an effect within an hour.
I felt better in wk3 recovery than I did in wk4. My nurse said it would be up and down like this for weeks/months and this can affect people psychologically as they think they've ticked off milestones only to find the same side effects pop up again weeks later. At least now I feel a bit more prepared for this bumpy road!
Onwards and upwards!
Helen x
Hi Helen. Good to hear you are coping. You seem to have an excellent support team to reassure you that nothing is wrong. It takes a long time to recover your sanity as well as your wounds. It was a year before I was comfortable with myself and another two years of continuing improvements. Well done
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Sarah. So you opted for RT after all. I think I would have done the same if I’d had a choice. Keep us updated if you can. Hugs.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Well done on the blog. I found it settled all the unsettling feelings I had not being in control of what was happening to me. Will you publish yours?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
