Update week 9 after treatment (15 since treatment started)

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All good news, tube came out as planned and he has continued eating more and more, still likes gravy or sauces to make it easier but back having an occasional packet of skips or quavers and eating his sweets again, alas no chocolate, still too gloopy. Went to see ENT doctor last week they are very pleased with him, and are pretty confident they got it all, how they know i am not sure as he only looked with camera. No sores at all. Didnt tell him what to look out for either but just said back in two months. Saliva coming back slowly, his been really lucky all the way through with not much pain. Obviously still a bit worried as he keeps thinking he has a new lump at the back of his throat but I think its because its still dry. Checking back with doctor before we go off on our sunny holiday in september. After the last couple of years its well deserved after loosing our son to bowel cancer last april, then him having a hip replacement in august to being diagnosed with cancer end of november.  His still doing propolis mouthwash and spray all through the day in the hope it helps his saliva glands. Now off to cook his sausages and mash. Keep your spirits up all of you that are going through this, it does end with good results.

  • Thanks for an encouraging update. Well done both of you. 


    Didnt tell him what to look out for either but just said back in two months

    My advice, and what I’ve always done is to get to know what looks normal now.

    I have a pen led torch and get your husband to have a good look every two weeks ( I used to do it weekly to start) 

    Have a good feel of his neck. I can do this myself but sometimes it’s better somebody else does it. 
    Get your oncologist to point out where lymph nodes are are the next check. 
    Any change particularly a swelling or pain that is new and persists for more than theee weeks needs action. 

    Enjoy your break. Take sun block for his neck and enjoy. Where are you going? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks for that, was surprised the doctor didnt say what to watch out for. We are off to an all inclusive adult only hotel in costa adeje Tenerife. Bit expensive but its worth it this year.

  • Everybody I know was told to note changes. To do that you have to know what’s normal for you. I asked my oncologist what to look for when I was discharged from treatment and he said just changes.

    was surprised the doctor didnt say what to watch out for.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Hope well done. What I do is get my husband every month now used ti be every few weeks ti check my neck. He’s done it since treatment finished. He stands behind me like the consultants do this  way he knows how my neck  feels and know s any changes. I have a magnifying mirror attached to bathroom mirror and I check my mouth regularly not every day.  I know what’s usuals for ne I am prone to tiny white ulcers on my tongue I know what triggers them for me.just get ti know your new normal. 
    Enjoy your holiday as for looking via scope they are the experts and know what they are looking at. His he having a pet crash scan later ? I had mine at 18 weeks post treatment. Yes factor 50 for his neck I use it every day home or away. For my first few trips abroad I used buffs ir scarfs for my neck when on beach under parasol or riding my bike plus walking round.  
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you, no scans or pet scans as nothing showed up first time, just abnormal cells in lump on his neck via the biopsy. Yes I will definitely keep an eye on him, I have been for the last 15yrs as he was diagnose aged 30 with haemochromotosis and thalassemia, he developed osteoarthritis ten years ago so has always been unlucky with his health. I am hoping next time we see the Doctor he will tell us the signs as it was a multidiscipline team and everyone was talking at once.