Week 1 - still nauseous

I didn't really get much change in taste till the end of week two, but then I didn't have chemo.

If your antiemetics are helping then take them for another couple of days?

Yes, I had to take one late morning as I was feeling so nauseous and felt better.

Hi Helen your  steroids will have finished as well ? We all get a steroid bout after chemo you may be getting a steroid slump.
 By midway through week 2 I had difficulty eating not actual taste as everything was heightened in taste. I couldn’t drink our Tap water so changed to bottled water fir drinks and herbal tea. i still use filtered tap water has ours is heavily chlorinated. 
Hazel x

Oh yes, the steroid slump is real, I certainly felt it yesterday! I've continued taking the anti-sickness meds yesterday/ today as it would have been a miserable weekend otherwise.  I'll speak to my H&N nurse tomorrow as I have a review. Maybe she'll say to just take them until I stop feeling nauseous.

I drink filtered water but definitely need ice, otherwise it's tasteless. I prefer fruit teas too at the moment!

Slight aching head tonight but nothing a paracetamol won't sort out hopefully.

Helen x

Hi Helen The weather won’t be helping I had my treatment July 2018 also a heatwave happened it wasn’t pleasant everyone else in the sunshine and a John and I trundling up and down motorways. Yes speak to team tomorrow hopefully week 2 will be a quieter week for you.We’re all here for you .

hugs Hazel x

Hi. I’m 3 months post treatment and have taste issues! Many things are bland or bitter. I cook for the family and have no idea what it is going to taste like for them (only one disaster so far!) 

I’ve found a few things which are pleasant and tend to stick to those. I find it changes from one day to the next though. It can be a bit disappointing when I get an idea of what I fancy in my head, but in reality it isn’t enjoyable. I’m convinced from reading others’ stories that it will return to normal ish at some point though. I’ve got quite good at asking If I can try a little before I order and have found places very accommodating. I’m not too despondent and keep trying different things all the time to build up my repertoire. Just glad to be able to eat again. 
x 

Hi Clare yes many of us went through the same experience. It’s hard trying to explain to family why one day we can eat x y z then the next day not a chance its frustrating snd expensive . It does get better like everything else it’s the waiting. Around the 6 month mark I had an improvement but sone days 2 steps forward and Ind back. It helped when chocolate came back to me lol a girls got to have some pleasure! Well done on cooking I passed that over to husband for a good few months.

Great post gives hope to others following. 
Hazel x

How's has week 2 gone????

I have my appointment for Oncology, next Wednesday.  I'm  terrified.  They are already muting a feeding tube because of where the tumour is and the condition of  my throat following chemoradiation will  make is very difficult to eat or swallow.     I really don't want a feeding tube.  Also taking teeth out and another  MRI because they think this has spready across my throat.    I am shaking and I haven't even started yet!!!!

Pauline please try not to stress about the feeding tube. I had one for eight weeks. Without it I couldn’t eat anything. Most of us do get a very very sore throat but the Pain is manageable and it’s all over and done with before you know it. 
Both Hazel and I have blogs that might put your mind at rest in that we are both 3 1/2 and 4 years clear and cured. 
You could also have a look at Marks profile MarkEL

Just click on his name 

Its not a walk in the lark but doable. 

Hi Pauline it’s nit unusual for feeding tube ti be fitted prior to treatment or like Dani  and i the n g tube during treatment. Treat it as part of the process it’s there to save your  life just like the mask is.The treatment isn’t easy but remember the end result is worth it. Once the pain starts yiu will be given pain killers and take them by rote get them into yiur system and I kept a spreadsheet of when to take everything.Having another mri isn’t unusual I had pet Ct scan a week prior to  treatment starting.i also had spread to 7 lymph nodes but 4 years later here I am. Today I’ve walked 11 km in Snowdonia and tomorrow it’s a30 km bike ride. Try not to stress easy to say I know. Trust your team.sorry Dani I’ve replied to you !

Hazel