Week 4

Hi Aly I had 7 weeks by end if week 4 I more or less plateaued. Apart fir my neck that did  get worse  as time progresses. Just keep on top of meds. Remember once treatment finishes the following weeks are still the same. Consultant may say 2 weeks I would say week 6 recovery us a turning point. But as we say we are all different I flew to  Spain week 8 recovery. I took my n g tube out end if week 3 recovery whuch made me swallow ensures. The mud ys snd ulcers hung around week 10-12. But this was me. 

Hazel xx

Hi Aly. I certainly plateaued at end of week four. By then I’d got the analgesia, eating and mouth care routine just right. 

Hi Aly I had 7 weeks of RT and unfortunately my pain continued to build until after the RT finished but I was struggling with the meds and this impacted….keep tight with the meds and this will help immensely x

You’re so right Aly. We all react slightly differently. For me, things were pretty good up until the two weeks after chemoradiation ended. It then became a question of using the meds properly  to control it. It never went away fully, even with meds, during that first few weeks after treatment but I managed. I’ll be eighteen months post treatment on Thursday and am living life to the full again.  Lots of us in here are testament to the effectiness of this treatment so hang in there and look forward to getting back to a new normal

Hi Markel

sorry to hi jack this thread but I was just wondering about how your dry mouth is now, 18 months on.   I am 8 months or so and there has been 1 or 2 improvements but still very dry.   Hope it’s ok to ask. 
lizzie 

I can’t wait for my tube to be out but I’m not counting my chickens just yet Hazel xx

Hi Lizzie. No problem. My dry mouth is still getting better as I approach the 18 months post-treatment mark. I sometimes wake up for a sip of water during the night but not very often. I still need a drink next to me if eating something dry or starchy, notably bread, but otherwise I’m fine. (I’m eating a bowl of Doritos as I write with no problem.) I still chew gum a lot but that’s as much to help clean my teeth and exercise my jaw as to produce saliva. I recently trained to be a registrar (as I really didn’t want to be sitting around at home dwelling on things) and one thing I have noticed is that sometimes my mouth dries out when I’m conducting a wedding in a big venue. But I always have a glass of water nearby just in case. So 18 months on I’d say about 85% back to normal. As I’ve kept saying, improvements are microscopic at times but things do seem to get better. Wishing you all the best. M

The thing is I’m not in any pain really , not like I was before treatment , I know , I’m not normal  x

Thankyou mark.  Good to know. I hope I do as well.  Regards.  Lizzie

Now that means the cancer is being annihilated 

Aly14 said:

The thing is I’m not in any pain really , not like I was before treatment