Just a quick update, so the longest day ever yesterday but finally at 8pm the surgeon phoned to say op went as planned!!! and my hubby was in intensive care.
To my amazement tonight he managed to FaceTime my son and myself. He is breathing unaided which I don’t know if that is a big step but I was surprised and he was writing on his whiteboard he wanted a burger and a milkshake. Off to see him tomorrow night, can’t wait to see him but slightly nervous
Oh well done. Now you can relax a little. Xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi brilliant news. Give him a virtual hug from us.
Baby steps you’ll soon have him home.
hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Only just noticed this because I was away last night and just got in. Great news all went to plan, must be dreadful waiting during the op, as the patient it's easy! In my case it was my son and my brother waiting for the call.
Hope you have a nice visit tonight, with a little luck he might even be out of the ITU and on a ward; he won't be a pretty sight I shouldn't think (not that that will bother you) but, as I said before, only temporary.
Thanks for letting us know, it's incredible how people on here become so invested in people's stories.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Went to visit my husband last night, out of intensive care and looking pretty good under the circumstances.
He was writing away on his whiteboard and as I said we have never been any good at give us a clue at Christmas They managed to fit the speech valve which is fab for the future fingers crossed.
Off to see him again tonight hoping to see a slight improvement
Thank you for you kind words
They managed to fit the speech valve which is fab for the future fingers crossed.
That is brilliant news. Your husbands attitude seems absolutely wonderful. He’s going to be good at this. He will be ok. And well done all of you.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Lynda. Fab news with you by his side you’ll get through this together.
Hope tonight’s visit goes well.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Speech valve in is great; as I've said before I couldn't have one but people I've met, mostly in online "webinars" set up by my medical suppliers, sound absolutely great; nothing "robotic" about their voices at all.
Takes practice I'm sure, and the cleaning regimen is a bit of a faff I understand, but a small price to pay. Maintenance without a valve is a faff as well but you get into a routine, becomes second nature.
Well done all of you!
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
His all,
just a bit of an update.
Had a lovely afternoon with my husband yesterday, he is doing really well. He had his first good night sleep and looked so much better for it. He had his first shower while I was there and then we went for a walk in the hospital garden. He said it was lovely to take in the fresh air.
Hubby is hoping to have stitches out tomorrow and do swallow test, he can’t wait to have a drink or something to eat as it has been over 3 weeks now. I have told him to to get his hopes up too much but I know he will be very disappointed if things don’t go to plan.
I am now starting to think about him coming home, really excited but also a little nervous. Nobody has told us what equipment he will need at home and what sort of support I will need to give. Any advice would be really appreciated.
Lynda
How exciting he's nearly coming home. I'm sure you'll get all the info you'll need.I did have a few things to do to help my husband but it was so long ago I'm sure things have changed massively so I'll keep out of this one and just wish you both luck.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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