Nasopharyngeal cancer

My mouth, tong are so sore, white patches everywhere, I had some mouthwash- did not work, I spoke with urgent line support, lovely people, I have daffimap and nystatin but relief is not good 

please help, 

thought I could have more time before it’s start ….

Hope you are well my friends, sorry to ask and ask ….

Hi. Keep asking. It’s what we’re here for. It seems a little early to be getting thrush but if it is that nystatin won’t work. You need Fluconazole 

What analgesia are you on? By the  time my mouth was full of ulcers I needed extended release morphine morning and night plus oramorph five times a day and  paracetamol four times.

It doesn’t take away the pain entirely but takes the edge off and you have to take it by the clock. 
I was also given Antacid with Oxetecaine which is local anaesthetic you swill round your mouth and swallow. 
Tell your team you’re not coping with the pain so that they can tune your pain killers 

Hi has Dani had said nystatin doesn’t work with radiotherapy induced oral thrush. You’ll need flucozonole. Plus you need to keep on top of pain relief by rote don’t wait for it to kick in. I had a spreadsheet ticked off what I had taken   It’s a full time job keeping on top of pain. 
Let us know  what you are on. 
Hazel 

Dani , I started my first cycle 12Ap, 5F , day 2 heartburn, day after sore throat and mouth, I trying to keep clean, I took out my dentures, yesterday was bad but this morning I can see white patches, can’t swallow easily . I have ibuprofen and paracetamol 

think I have cocommodol in box …

You poor thing. Of course you’re on Fluorouracil. I’m sorry I forgot that. It’s the culprit. Cocodomol  might help if it’s the 30mg. BUT DONT take paracetamol as well. Get onto your team. There’s no need to suffer. 

I have chemo only for now 

hi As Dani says  contact your team tomorrow ,,my oncologist uses to say to me cancer is bad enough cancer and pain isn’t good enough take the painkillers the clues in the name pain killers.If you are on cocodomol remember you’ll need laxatives normally laxido or movicol which are gentle stool softeners  constipation is the last thing yiu will want I can assure you of that one  Again get them on prescription.Your house will resemble boots the chemist  hooe yiu managed  daughters birthday ?

Hazel 

Hi Hazel 
we did it ,cake has been baked by Tesco, my partner  was amazing, it was good 

tired now very sore but would do again.

 I will contact my team tomorrow morning . 
thank you all  

Hi next year you can  bake her cake am sure Mr Tesco was fine. It’s the company that counts   
Let us know what team says. Tell them about the thrush 

Hazel 

Hi , spoke with Mandy my CNS and I have now cocomodol effer and Daffimam spray, tomorrow gelclair 

feel better and going to cook soup now , hopefully I will able to eat 

. thank you